Hi, my name is marty600! Help with Meniere's Disease

marty600

Hello Marty here I’ve had me nieces for about six years had a break from it past two years but has come back with a vengeance been rough for three weeks now unsteady and headaches trying betahistine dihydrochloride again can someone tell me there experience with this I couldn’t get on with it before be glad for any info thanks

marty600

Lol that should read Meneires decease

marty600

Can someone tell me how they get on taking betahistine dihydrochloride tablets 

marty600

hi hi looking for fellow sufferers

Forestphotographer

Hi Marty600, 

I also have Meniere's disease, which I've had for many years. Effects my right ear with hearing loss and tinnitus and balance problems. 

Diane 

marty600

Hi Diane have you taken betahistine dihydrochloride I’ve been free of it for a couple of years but it’s back with a vengeance I’ll try the tablets again 

marty600

who Marty joined today would love to know any useful hints dealing with menieres 

marty600

has anyone got tips how to deal with menieres 

Hannah_Alumni

Hello @marty600

Welcome to the community, I saw your other thread and saw this one so I will go ahead an merge them for you, so you have everything in one place  

We don't generally give medical advice on here, so I am just putting that as a disclaimer in case you had any follow up questions or somebody gives medical advice and didn't know the house rules. 

Is your GP / Specialist thinking of putting you on these tablets? If this is something you are looking at yourself, we would always say to consult with your GP / Specialist but they will be the best ones to speak to about the medication's stats and any other possible alternatives. 

marty600

Yeh I’m currently taking betahistine wondered what other people’s experience is taking them thanks

Forestphotographer

Hi Marty, 

I cannot go into details on the tablets due to house rules but i can recommend you join the Meniere's UK Facebook group. Hope that's ok with the admin? Many thanks Diane 

marty600

Ok Diane thanks very much I understand ,feeling a lot better today managed a bike ride been doing some vestibular exercises seem to help a bit thanks again Diane.

L_Volunteer

Glad to hear you are feeling a lot better now @marty600

marty600

Heya I was looking for fellow sufferers of menieres decease

L_Volunteer

I do not have Meniere's disease @marty600 but hopefully, if people do, people can let you know 

marty600

thanks thanks very much would love to know other people’s experiences 😃

L_Volunteer

I am hoping you can hear about other people's experiences soon too @marty600. Got my fingers crossed for you. 

Until then, you might also find these resources helpful:

• Meniere's Society
• NHS inform
• Vestibular Disorders Association

I hope these resources are at least semi-helpful. Please don't hesitate to let us know if there's anything else we can do to support you until you hear about other people's experiences 

marty600

thanks very much thanks very much I’m trying vit d heard it’s meant to help

L_Volunteer

How are you finding trying vitamin D @marty600? 

marty600

heya hi yeh seem to be giving me more energy menieres seems to have calmed down

Alex_Alumni

That's good to hear, thanks for sharing the update @marty600