Hi everyone I am Samantha, I have not posted for awhile as most of my problems have been sorted out. I have a whole set of new problems which started since October 2024 and now I feel I am back to square one in knowing what to do if anyone can give me some advice please do. My main disability is long term back problems and arthritis all assessed and showing up on M.R.I. scans so no problem with that. In October 2024 I collapsed in the supermarket nothing like that has ever happened to me and I have no history of blackouts/ fainting or seizures. There was no warning to this passing out and I woke up in hospital. There is a new consultant for this latest illness and he is a neurosurgeon, and he has told me that I could have a benign brain tumour and his team would be looking after me. To cut a long story short I spent 10 ten days in hospital where I was only monitored, the nurses there were wonderful but nothing much was done about the fact I passed out. I was discharged from hospital with a new lot of medication and was told appointments would be sent for me to attend out-patients clinics. The problems then began to start I would get letters for appointments and then two or three days later they would cancel the appointment for a new one then the same thing would happen again. I needed a head scan and because I do not like closed in scans an open upright scan was found for me so I was very pleased. The hospital I was in are supposed to lay on transport but they are telling me now the only transport is for people who will be on a stretcher. The hospital is about one and a half hours by car from my home and my daughter has been excellent to me but she cannot drive. I cannot do the public transport because of my back and mobility issues but hospital transport just said they cannot help. I know the head scan was extremely important and almost two weeks ago I arranged a deal with a taxi company as the clinic was in Marylebone in London it cost me £140 pounds but it has been done. I had an arrangement set up by my consultant that on 10th March he would do a telephone consultation with me to give me my results and let me know how we would go from there. Last Thursday the consultants secretary phoned me saying he cannot do the 10th March and could I wait until April. I told her I have had enough of all these cancelled appointments and she is supposed to be phoning me next week on 6th March with at least some news. I have completely had enough of all of it now does anyone know who I can get further information about this from or complain to as it is really starting to get me down and is messing with my mental health Sorry this is so long but any replies will be much appreciated.
