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Adult Disability Review

lynzbrown007

I am due this month to have a review since changing over from PIP. I have complex mental health as well as Fybro. My question is what proof would I need to send for my review? My GP isn’t the most helpful so I am concerned I won’t have enough evidence. I see a CPN regularly and I’ve been keeping a diary of my appointments, medications, symptoms etc. My husband is my carer and is also going to put a letter in. Anything else I should do? I am so stressed about this process so any advice would be appreciated.

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Comments

anisty

Hi - i'm not sure but i hope you will keep us updated with your review as i am appointee for my adult son and he is due an ADP review in August this year.

A bit annoying as his PIP award was until Nov 2026 but there you go.

I want to ask you (as i have never seen an ADP review form but have seen sample pages online) does the review form literally ask you to tick a box saying change or no change?

Or is there a bit more to it than that?!

In your case, i think the CPN would be the best person to write your support statement (if a statement is asked for) or to be the main phone contact.

I would assume the CPN sees you at home, has met your husband and has a very good understanding of how your difficulties impact you. And they are a registered professional. You'll not better your CPN as the perfect contact.

For my son, a support worker from the autism centre he attends was ideal for PIP. They know my son but also are very good at speaking about his difficulties in the context of autism.

Likewise, your CPN will be able to speak about your limitations in the context of your fybro & mental health.

I agree - GPs are not the best supports for ADP or PIP.

lynzbrown007

Hi,

The review form asks if you have a change then there is space for additional information. I haven’t had a review for a long time so I am just really nervous about it. I had the same CPN for years and she has just left so my new CPN has only being seeing me for a month which is worrying me. She takes a completely different approach and doesn’t really know me so I am a bit concerned. I read that Adult Disability is a bit more personable and that they accept statements from carers and family as that is who knows you best. Hoping that is the case and I don’t loose my award due to the shake up in medical professionals since Covid. I have 4 weeks to complete my review so hopefully it will be over soon.

anisty

Yes, pip also accepted statements from family but i think i'd be nervous about that as your main or only support statement.

I think Catherine's idea is good - i did this for my son too and got his notes right back to his birth.

It is also handy to see the reports that are in there though in my son's case, some important ones were missing and they said, after a few years, they destroy full reports and just put a summary line on their records.

So - my son's 10 paged detailed autism and cognitive reports had been condensed into one word: autism!!!

I took my copies to the surgery and insisted the full report was kept there in case DWP called them up.

If you just ticked no change though - surely they would renew your award as is? (I don't recommend you do this as that would be risky but what basis would they have to reduce/cancel your award if you just tick no change?

Be interesting to know if anyone has ticked no change for all descriptors and what happened.

Like you, i will be putting in best evidence.

lynzbrown007

Thank you I didn’t realise I could ask for my notes. I asked for a basic letter and they charged me for it. Doesn’t state half of what I need so thank you

plug34

I have a pip award until Oct 2026 but I am so anxious now as have been changed to ADP and now received a letter to say my award will be reviewed in July 25 I feel this is very unfair and way too soon it's like my award has had 18 months taken off it . I called SS and was told it's because I'm now on a different system and it's happening to everyone who has been moved to SDP I'm very upset and my anxiety is through the roof and this is just doesn't seem right when my award is to Oct 26 I would have expected a review two ot three months before the end date .

anisty

Same for my son @plug34. It's not so bad in his case as he was awarded in April 2020 and it was supposed to be 5 years but initially they awarded til feb 2026, then extended to nov 26. I think these extensions were due to covid.

His ADP is due for review now August this year so he will have had 5½ years of this award.

And i will be surprised if he gets refused ADP - he had his capacity assessed in 2023 and 2 independent clinical psychiatrists agreed he lacks capacity. And i have those 2 new reports to submit when the time comes.

lynzbrown007

So a wee update on evidence for ADP. I spoke with my local GP surgery requesting notes and a medical summary for evidence. Practice manager said that ADP is now an online portal where they request information digitally through the system. Then send a list of questions for the GP to tick on how these medical issues affect the patient. Not great news as I see a different GP every time I go and have never even been asked how my difficulties affect me. Hoping my husbands personal statement, diaries and CPN support are all taken into consideration rather than a tick ✔️ on a form from the GP.

plug34

@anisty Dont think its fair bad enough to go through this when its due to happen but 18 months before and having to wait until July for the letter. Hope it all works out for your son .

anisty

https://forum.scope.org.uk/discussion/comment/996022#Comment_996022

Oh dear i do not like the sounds of that at all.

What i did with my son's last pip - because he keeps well physically and never goes to the GP - i sent a copy of my son's completed pip form (actually i took it to the surgery in person) and handed it over.

They weren't too happy to take it and a day or so later i got a call from the person who manages the records to say she didn't know what to do with it.

She was really friendly though and i explained my son never came to the GP and i was worried what a gp would say if DWP called them.

Well i don't know exactly what they did with what i handed in. Maybe it got shredded. Who knows.

All i know is that DWP DID call the practice for information and the gp did a good job of supporting the claim. So i don't regret doing what i did.

So - there's another possible - alert the practice to the review and present a summary sheet of what your responses have been on the form. I would think that if the GP is in disagreement with what you say, the practice would call you up and say so. And then you could explain further. Didn't harm my son's claim anyway.

anisty

I know but what i'm thinking is if my son goes through it this year and gets a good long award, that's it done.

Of course, if they stop his money i won't be happy at all - he will be over 9k down with them reviewing 18 months early!

anisty

@lynzbrown007 - so sorry I gave wrong advice earlier - i just found a thing here that, for ADP, a relative's evidence is given equal weight to a medical professional's

ADP has been designed to be a person-centred process, limiting what the claimant needs to source and provide. So a key difference is that people no longer need to tie themselves in knots collecting, and often paying for, additional medical information to support their claim. This removes a huge burden from the claimant, as Social Security Scotland will take the information provided and collect the additional information itself. And as all evidence will be treated equally, information from family or carers is given the same weight as that of a medical professional.