Hello to all, As you might guess I am Matthew’s dad . Matthew, like all our adult children is rather special. Matthew suffered devastating oxygen deprivation at birth , that was 47 years ago ! Despite being non verbal with arrested development he carries his burdens with a light heart and a gentle spirit.Needless to say there have been times of difficulty and he has not always been treated well. Presently he doing well, he has his own rented home and his own 24/7 care package.
Don’t think there has ever been a time when there wasn’t some issue that needed resolving sometimes serious,sometimes not so . Right now there are concerns about his funding and some health issues. As this is my first post it’s not the time to unload, just happy to establish contact.
On a general theme, I am Matthew’s 1.2 C of P Representative . I feel singularly unsupported in this role , like there’s a vacuum where there ought to be information to empower 1.2 Representatives to actually make a difference. Don’t know how I am alone with this perception?
Here’s a pic of me and Matthew being happy 😊
