One-year-old niece has semi-lobar holoprosencephaly

jharris63
jharris63 Online Community Member Posts: 1 Listener
edited January 2017 in Families and carers
Hi All, I am a carer for my 1 year old niece who has a brain condition called Semi-lobar Holoprosencephaly. wondered if anyone else had anything similar for questions and discussions.

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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @jharris63

    Welcome to the community! 

    I found the website Families for HoPE for families and children diagnosed with holoprosencephaly that might be helpful?

    Do any other members here have any experience of     holoprosencephaly?

    Sam

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