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One-year-old niece has semi-lobar holoprosencephaly
jharris63
Member Posts: 1
Hi All, I am a carer for my 1 year old niece who has a brain condition called Semi-lobar Holoprosencephaly. wondered if anyone else had anything similar for questions and discussions.
Replies
Welcome to the community!
I found the website Families for HoPE for families and children diagnosed with holoprosencephaly that might be helpful?
Do any other members here have any experience of holoprosencephaly?
Sam
Senior online community officer