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One-year-old niece has semi-lobar holoprosencephaly
jharris63
Member Posts: 1
Hi All, I am a carer for my 1 year old niece who has a brain condition called Semi-lobar Holoprosencephaly. wondered if anyone else had anything similar for questions and discussions.
Comments
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Hi @jharris63
Welcome to the community!
I found the website Families for HoPE for families and children diagnosed with holoprosencephaly that might be helpful?
Do any other members here have any experience of holoprosencephaly?
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