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Hi, my name is ania76!
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ania76
Community member Posts: 7 Listener
My son Adrien is 6 years old and was diagnosed with ASD, and then with a very rare genetic condition called Pitt Hopkins Syndrome. I’m a single mum and we live in Scotland. It was so good to find this website!
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Hi ania and welcome
Please have a look round and join in with any thread. If you have any questions just shout out
CR
Be all you can be, make every day count. Namaste -
Hi @ania76
Welcome to our online community/family.
I hope that things are ok in Scotland this afternoon ???
Please please have a good look around our site.
If you have any questions please let me know ???
Many thanks. -
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My daughter has autism and I know how isolated you can feel! X
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@smaller78
thanks,yes, Adrien’s both diagnosis makes him a very complex case.. He’s non verbal, doesn’t walk, still in nappies, need to be fed etc but he’s a brilliant boy with a massive heart. We were lucky today to meet his personal assistant I’m about to employ ( as my respite option ), and she’s fantastic. Her son has disability, too, and she has worked for 10 yrs at my son’s schools, so I’m so happy.. I can’t possibly express how much.. We were only given 130 hrs for the whole year, but I’m so glad I’ve met someone who understands us. I know things will change for the better, soon.
How is your son’s autism affecting him? How old is he?
thanks a lot for replying to me X -
Hi @ania76
No probs it’s my pleasure!!!
Please please let me know if I can help you in anyway???
Thanks. -
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Hi @ania76
It’s great to have you onboard!!!!
Please please let me know if I can help you further????? -
@steve51
will do, thanks! -
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Scope
Senior online community officer -
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