Looking to chat with other parents of disabled kids

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hayley1977
hayley1977 Community member Posts: 1 Listener
edited April 2018 in Families and carers
Hi im Hayley I have 5 kids 2 of which have disabilities one has juvenile idiopathic arthritis and the other has attention defeceit hyperactivity disorder and Tourettes syndrome would appreciate some advice and just to talk to other parents going through similar problems with hospitals etc.

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  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
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    Hi @hayley1977
    Thanks for your post and a very warm welcome to the Community! There are lots of Community members who will be able to talk with you. I will include the link to the Parents and Carers section here:
    https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults 

    If you need anything else, let us know. Great to have you here!

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,665 Championing
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    Hi @hayley1977 Welcome to the community!
    Scope
    Senior online community officer
  • fishingmum
    fishingmum Community member Posts: 562 Empowering
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    Hi there, I am new here as well. My name is Tracy and my youngest is autistic. I have had a bit of a bumpy ride with my son as he can not attend mainstream school and I have to home school him, which is difficult as he can not do even a fraction of the work of other children his age. Which means I have difficulty with the education authority often as I have to tick the right boxes which he will never be able to do, hospital appoinments, well he was born with a liver condition and also has gilberts syndrome. It is difficult, but I do have a few things I take with me to make it easier. I laminate favourite colouring book pages and take baby wipes and pens with me that and a couple of small toys that fit in to my bag. What kind of things do you do to make it easier?
    life is too short to let others make you miserable.
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,790 Championing
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    Welcome to the community, @fishingmum!
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
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    Hi @fishingmum
    Great to have you in the Community! I will include a link to a discussion where you can chat with fellow parents. I'm sure your experiences will be really useful

    https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • zanyR
    zanyR Community member Posts: 4 Listener
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    Hi I m also new here I don’t know where to start.i don’t have much friends n family around.i have 2 daughters and 1 son.my son has got learning difficulties and asd and autism .my elder daughter go sever disability and eplipse no talking and not walking .
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,790 Championing
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    Welcome, @zanyR! I hope you get to talk to some other parents- if we can be of any assistance, do let us know.
  • April2018mommy
    April2018mommy Posts: 3 Listener
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    Hello, if we are able to help let us know.