My little girl has something called SB - a birth defect of the spin

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curiousmom1996
curiousmom1996 Posts: 35 Contributor
edited March 2019 in Families and carers
I have two children. I’m twenty one years old now. I live in a small apartment with my two children and my partner too. My little girl has something called SB. Basically speaking it’s a birth defect of the spine. Ever since the diagnosis day I’ve been busy learning all about how disability changes people and what it means to be included in society as well. I hope to post on here when I get a chance to. My two mini mischief makers are proficient in keeping us on our toes constantly as well. 

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  • Richard_Scope
    Richard_Scope Posts: 3,786 Cerebral Palsy Network
    Hi @curiousmom1996

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know. 


  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @curiousmom1996

    Welcome! How are you today?

    Ami :)
  • curiousmom1996
    curiousmom1996 Posts: 35 Contributor
    Good you. It’s been six months since I’ve been on here. Life keeps me busy. 
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    I've been good too thanks :) time flies!
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @curiousmom1996

    Good Evening & Welcome ??

    It’s great to meet you today ????

    Please please let me know if there’s anything that I can help/support you with???

    @steve51
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @curiousmom1996
    Welcome to the community, I have moved your post over to the Navigate section where you might be interested to hear more about their service?
    Navigate provides one-to-one online and telephone support to parents who have a child going through diagnosis, or whose child has received a diagnosis of a disability, or acquired an impairment within the last 12 months.  The service is available to parents living in England or Wales.  Navigate advisers will work with parents for six weeks, giving emotional and practical support, as parents start their journey as a parent of a disabled child. 
  • Kate_Scope
    Kate_Scope Scope Posts: 73 Empowering
    Hi @curiousmom1996 and thanks @Sam_Scope for putting this over to this section. 

    Here is the link to the navigate page so you can see if this service may be of use to you. 
    As Sam has explained we offer emotional support and practical support to parents who are going through the early months of diagnosis or on the pathway to diagnosis. 

    I hope that the Navigate service could be of use to you  

    https://www.scope.org.uk/navigate

    good luck 
    Kate 


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