angry with my G.P + C.C.G they are lowering my meds

loopy_lou
loopy_lou Online Community Member Posts: 11 Listener
edited November 2018 in Neurological impairments and pain
Hi everyone feeling angry with my G.P + C.C.G they are lowering my meds apparently they are shutting all the west essex pain clinics I've been on fentanyl patches since 2001 now any body who's on opiates are to be taken off but they haven't even offered me anything as a substitute so feeling down as you can imagine pains going to get worse + I don't no where to turn been to citizens + rang pals 
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Comments

  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @loopy_lou welcome to the community!

    Sorry to hear this! Were Citizens Advice or PALS able to offer any advice?
  • topshoes
    topshoes Online Community Member Posts: 436 Empowering
    Hi @ loopy-lou welcome , i sure someone will be on here to help you out .
  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    Not much citizens gave me number for essex health they sent me back to pals but pals works for c.c.g so I've hit dead end + thanks for answering new to all this not very good at sharing feelings! 
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    This does sound really frustrating, my heart goes out to you!

    Our community is full of incredible and knowledgeable members and I am sure they will be in contact with you soon to offer support and advice.

    Its OK! We are a friendly bunch and we understand it can be daunting at first.

    Do let us know if we can be of any further assistance! :)
  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    Thank you I appreciate that x
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    Good Morning & it’s great to meet you today.

    How frustrating are they (gp + pain clinic)
    where are you based???


    I’m one off the “Community Champions” so please please let me know if I can help you further???

  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    Sorry what's a community champion ?
  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    What's a community champion + I'm based in Essex
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    Sorry for the confusion!!!!

    We monitor/look after the “Online Community” on behalf of “Scope”



  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    Oh ok thank you for replying still trying to work out what I'm doing not very good at this!
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    No probs!!!!

    Please please let me know if you would like me to show you around??????
  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    Yes plz   :smile:
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Have you read our how-to community guide? It helps to give you an idea about how the online community works :)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    “No probs”I will get to it straightaway if that’s ok???


  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    Sorry to ask but is there anything specific that you want me to start with?????


  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    How would I go above the c.c.g to find out the apparent research they have done on opiates if that's ok thank you again x
  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    Hello @loopy_lou   Pleased to meet you . Sorry what has happened.

    Understand your having problems with your treatment and may I ask have you spoken to your Practice Manager first.

    About your treatment or even your Doctor. If you feel you are hitting a brick wall and no one is listening to you.

    You perhaps need a advocate to represent you.

    There are several ways to look for one.  If you look on the website NHS one you will see a range of services.

    Look under Advocacy.  A advocate is some one that represents you in your treatment or care. Speaks on behalf of you. Either in Doctors and other medical professionals.

    There are not councillors, therapists but you in agreement and consultation can discuss how they can help you together, using what you wish them to say.

    Local Health watch on the NHS website has a complaints procedure if you wish to look at that.

    Sorry if this is a lot to take in.

    I am the same as @steve51 and @Ami2301 I am also a community champion.

    Of the SCOPE website.

    Hope that helps.

    Please ask if we can advise further.

    Pleasure to meet you.

    Take care

    @thespiceman
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    No Probs!!!!!!!

    Here’s some info for you below.

    https://www.citizensadvice.org.uk/health/nhs-and-social-care-complaints/complaining-about-the-nhs/who-you-can-go-to-when-you-have-a-problem-with-the-nhs/complaining-to-a-clinical-commissioning-group-about-services-they-commissioned/

    https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/

    https://www.england.nhs.uk/contact-us/complaint/

    I have also been doing my own research on Opiates myself which is going great guns at the moment.
  • loopy_lou
    loopy_lou Online Community Member Posts: 11 Listener
    That's really kind of you thank you very much  your an  o:)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @loopy_lou

    “No Probs”

    Please please keep me in “mind”

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