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angry with my G.P + C.C.G they are lowering my meds
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loopy_lou
Community member Posts: 11 Listener
Hi everyone feeling angry with my G.P + C.C.G they are lowering my meds apparently they are shutting all the west essex pain clinics I've been on fentanyl patches since 2001 now any body who's on opiates are to be taken off but they haven't even offered me anything as a substitute so feeling down as you can imagine pains going to get worse + I don't no where to turn been to citizens + rang pals
Comments
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Hi @loopy_lou welcome to the community!
Sorry to hear this! Were Citizens Advice or PALS able to offer any advice?Disability Gamechanger - 2019 -
Hi @ loopy-lou welcome , i sure someone will be on here to help you out .
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Not much citizens gave me number for essex health they sent me back to pals but pals works for c.c.g so I've hit dead end + thanks for answering new to all this not very good at sharing feelings!
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This does sound really frustrating, my heart goes out to you!
Our community is full of incredible and knowledgeable members and I am sure they will be in contact with you soon to offer support and advice.
Its OK! We are a friendly bunch and we understand it can be daunting at first.
Do let us know if we can be of any further assistance!
Disability Gamechanger - 2019 -
Thank you I appreciate that x
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Hi @loopy_lou
Good Morning & it’s great to meet you today.
How frustrating are they (gp + pain clinic)
where are you based???
I’m one off the “Community Champions” so please please let me know if I can help you further???
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Sorry what's a community champion ?
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What's a community champion + I'm based in Essex
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Hi @loopy_lou
Sorry for the confusion!!!!
We monitor/look after the “Online Community” on behalf of “Scope”
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Oh ok thank you for replying still trying to work out what I'm doing not very good at this!
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Yes plz
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Have you read our how-to community guide? It helps to give you an idea about how the online community works Disability Gamechanger - 2019
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How would I go above the c.c.g to find out the apparent research they have done on opiates if that's ok thank you again x
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Hello @loopy_lou Pleased to meet you . Sorry what has happened.
Understand your having problems with your treatment and may I ask have you spoken to your Practice Manager first.
About your treatment or even your Doctor. If you feel you are hitting a brick wall and no one is listening to you.
You perhaps need a advocate to represent you.
There are several ways to look for one. If you look on the website NHS one you will see a range of services.
Look under Advocacy. A advocate is some one that represents you in your treatment or care. Speaks on behalf of you. Either in Doctors and other medical professionals.
There are not councillors, therapists but you in agreement and consultation can discuss how they can help you together, using what you wish them to say.
Local Health watch on the NHS website has a complaints procedure if you wish to look at that.
Sorry if this is a lot to take in.
I am the same as @steve51 and @Ami2301 I am also a community champion.
Of the SCOPE website.
Hope that helps.
Please ask if we can advise further.
Pleasure to meet you.
Take care
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
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Hi @loopy_lou
No Probs!!!!!!!
Here’s some info for you below.
https://www.citizensadvice.org.uk/health/nhs-and-social-care-complaints/complaining-about-the-nhs/who-you-can-go-to-when-you-have-a-problem-with-the-nhs/complaining-to-a-clinical-commissioning-group-about-services-they-commissioned/
https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/
https://www.england.nhs.uk/contact-us/complaint/
I have also been doing my own research on Opiates myself which is going great guns at the moment. -
That's really kind of you thank you very much your an
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