Chronic Pain - , with no confirmed diagnosis I am not eligible for any financially help

Moonhowler

Hi, all I’ve lived in chronic pain for 30 +years.  I have a recently discover immune system problem that causes me to get pneumonia, Pleurisy, or major chest lung infection every year.  I am now in so much pain in most joints and muscles I am finding it very hard to work and support myself financially.  Several doctors talk about Fibromyalgia but no one as yet willing to confirm.  At a loss as where to turn, with no confirmed diagnosis I am not eligible for any financially help.  Any suggestions and advise greatfully received.

steve51

Hi @Moonhowler

Good Afternoon it's great to meet you today ?

I am very very sorry to hear about your current situation.

Can you use your "Imune System Condition" 

For your "Benefit Application"

Yes I have had "Chronic Pain"  since 2005 but no one will also give me a diagnosis !!!!! 

Please please let me know if you need any further help??? 

@steve51

thespiceman

Hello @Moonhowler   Pleased to meet you welcome.

Thank you for joining and sharing.  I am sorry what you are going through.

I am one of the team of community champions.  Who advise and help new members who join.

I am at a loss why do you think you are not entitled to anything because your condition has not got a name or a diagnosis.

If you are eligible for support and fit the criteria for benefits.

If you need help and support please have look at the information I have provided for you.

If you having problems and issues .You have come to the right place.

Have you had a look at our online benefit checker.  It is a handy tool which should be able to give you an idea of what benefits you may be entitled to.

You can also find out more information about benefits on our website.

Have you been on line for looking for support.?

Have following organisations might be of use to you.

https://www.action-on-pain.co.uk.

https://www.raredisease.org.uk.

https://www.undiagnosed.org.uk

Hope that helps. Please ask if we can help with anything . Some one will know.  From our community or a member of our team.

 So wish you all the success. I am here anytime if you need to some one to listen.

Please take care.

@thespiceman

Moonhowler

Thanks to everyone for taking time to comment.  Lots of info to check and digest, and more importantly some hope.

steve51

Hi @Moonhowler

No probs - Yes there is always “HOPE”

@steve51

Sam_Alumni

Hi @Moonhowler
As others have said, it is not necessarily about a diagnosis but how your impairment affects you day to day. It could be worth you filling in the self PIP form to see how you could potentially score.