If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

In need of support

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karen01
karen01 Community member Posts: 2 Listener
edited January 2019 in PIP, DLA, and AA
Hi everyone, I hope everyone is managing as best as possible. 
I was wondering if any one experienced the same devastating situation. 
I recently advised PIP that I have been diagnosed with pots and fibromyalgia and my health had deteriated  further .
I had to attend another assessment and the assessor totally disregarded everything I stated and didn't even put i have to walk with stick because of leg pain and hypomobility in joints and balance issues. I had been discharged from hospital 2 days before with pneumonia and still having breathing issues.
I'm so devastated and it's hard dealing with pots everyday and constantly feeling your going to pass out let alone the pain with fibromyalgia. ..don't go anywhere unless it's hospital appointment and have to have someone with me. 
.I have welfare adviser appealing this for me, just wondering if anyone can give me hope. 

Comments

  • Yadnad
    Yadnad Posts: 2,856 Championing
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    I would rely on what your advisor suggests. You are lucky that you have found someone to help you - many fail in that quest.
  • poppy123456
    poppy123456 Community member Posts: 57,289 Championing
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    Hi,

    It's always very risky requesting a change of circumstances for a worsening condition. Unfortunately, no one can tell you your chances of a decision going in your favour.

    You have the best possible help with a welfare rights rep so your chances are higher. Good luck.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • karen01
    karen01 Community member Posts: 2 Listener
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    Thank you so much 
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