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We want to hear from you: please tell us about your experience of the online community.

Hello to you all.xx

helenzx6r

Hello every1.x

I’m new to all off this after recently
being diagnosed with disability’s.(
I hope to find answers on here to lots of questions I have.x

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Comments

steve51

Hi @helenzx6r

Welcome it’s great to meet you tonight ?

Yes we have got lots of info and advice on here for you.

Please please let me know if there’s anything that I can help you with ❓❓

@steve51

helenzx6r

Hi Steve
thanks for your lovely comment
I feel like I’m
just spinning on the spot with what’s best to claim I have put a post in another section.x

steve51

Hi @helenzx6r

That’s my Pleasure.

Please please let me help you with things.

We have got a “Benefit Calculater” on here which will really help with things.

Please please let me know how you feel ❓

@steve51

helenzx6r

I’m not finding it easy
to get my
head around all that’s happening at the moment.(( adjusting to my disabilities and pain is not easy..(
im single and have no family
support.((
I am really struggling.(

Ami2301

Hi @helenzx6r welcome to the community!

Sorry to hear that you are struggling, have you spoken to your GP about receiving any emotional support?

steve51

Hi @helenzx6r

I’m very very sorry to hear about that!!!!!!

Yes I have had chronic pain since 2005.

Please please let me know where you want to start & I will see what we can do?????

@steve51

helenzx6r

I have been suffering for years with chronic back pain.((

I have spoken to my Gp and she has put me on a higher dose of amitriptyline...

steve51

Hi @helenzx6r

Yes I have been on Amytriptline for some years now.

I am on the maximum amount nowadays (150mg) per night.

Sorry to ask but are you taking any other meds???

Are you just seeing your GP at present for your pain???

@steve51

helenzx6r

I’m taking 30mg nightly of amitriptyline
and it’s not working.(
I’m also taking naproxen
codeine
Paracetamol
amd im still in so much pain.(
im
due to go for a cortisone injection into my hip on 20th jan
im not hopeful as they never worked when I had them in my wrists for carpol tunnel and dequervains...:/

steve51

Hi @helenzx6r

Yes I am rattling with mine and they don’t do much to be honest.

Don’t worry it’s well worth giving the injections a try!!!!!

Is your gp sorting this out for you????

Please let me know if you need any further help/support?????

@steve51

helenzx6r

I’m just really confused on applying for the correct benefits.(
my Gp is useless if I’m honest
i asked for a summary of my
medical notes and there is loads missing.((
i need the evidence for DWP and local council to apply for my blue badge.
I’ve asked for a medication review tomorrow
she is going 2 to call
me.x

steve51

Hi @helenzx6r

We have got plenty of help/advice for you to sort your Benefit’s on here believe me!!!!!

Please please let me know if you would be happy with this way?

@steve51

helenzx6r

I will take a look
ive been all
Over the internet looking
for advice
how I came across this site.)

steve51

Hi @helenzx6r

That’s great news!!!!

I will be here for you.

@steve51

helenzx6r

Dr just called and wants see me on Monday for a full review

all I done was cry
on the phone to her
and its my bday today.(( just another day for me...(

Pippa_Alumni

Happy birthday @helenzx6r! I'm so sorry it's not been a good day so far. You've made a really good first step in arranging to see your doctor and I hope it will help. In the meantime, you're among friends here, and we're wishing you all the best.

Do take care and do something nice for yourself today, you deserve it!

thespiceman

Hello @helenzx6r Pleased to meet you welcome. Congratulations on your birthday.

Sorry what you are going through. We are here to support you. You are a valued member of our community.

I am one of the team of community champions who advise and help new members who join.

I can understand your pain we are here to listen .

One bit of advice I can suggest is small steps. I know from reading wish to have advice on benefits we have a lot of information on the website.

If it is possible speak to your local CAB office and ask for a benefit review what your entitled to. Make an appointment and go down.

They will tell you. Having some one face to face speaking does help.

I am a gentleman of a certain age and cope well with this IT. Even so have some days get a lot of confusion. Forget what I am doing. Need guidance.

Has to be simple for me to understand .

As for your Doctor are coping OK speaking and talking to them.

I know even myself have and can talk have anxiety and need the services of an advocate. Sometimes. That might help. The practise manager of your surgery should be able to help.

With seeking advocates that is some one to speak on your behalf if you struggle to ask for what you need. I believe NHS websites might have information on them.

One further point wish you well . Keep in touch anytime.

Please take care.

@thespiceman

helenzx6r

Pippa_Scope said:

Happy birthday @helenzx6r! I'm so sorry it's not been a good day so far. You've made a really good first step in arranging to see your doctor and I hope it will help. In the meantime, you're among friends here, and we're wishing you all the best.

Do take care and do something nice for yourself today, you deserve it!

That’s very kind of u thank you.x
i am spending another day indoors hiding away
trying to cope with the pain.((

helenzx6r

thespiceman said:

Hello @helenzx6r Pleased to meet you welcome. Congratulations on your birthday.

Sorry what you are going through. We are here to support you. You are a valued member of our community.

I am one of the team of community champions who advise and help new members who join.

I can understand your pain we are here to listen .

One bit of advice I can suggest is small steps. I know from reading wish to have advice on benefits we have a lot of information on the website.

If it is possible speak to your local CAB office and ask for a benefit review what your entitled to. Make an appointment and go down.

They will tell you. Having some one face to face speaking does help.

I am a gentleman of a certain age and cope well with this IT. Even so have some days get a lot of confusion. Forget what I am doing. Need guidance.

Has to be simple for me to understand .

As for your Doctor are coping OK speaking and talking to them.

I know even myself have and can talk have anxiety and need the services of an advocate. Sometimes. That might help. The practise manager of your surgery should be able to help.

With seeking advocates that is some one to speak on your behalf if you struggle to ask for what you need. I believe NHS websites might have information on them.

One further point wish you well . Keep in touch anytime.

Please take care.

@thespiceman

Thank you for your lovely kind reply
was very kind of you.x

thespiceman

Hello @helenzx6r Thank you for kind words. My pleasure .

I hope my post and @Pippa_Scope helps and eases the pain on this your birthday.

Birthdays are I know difficult days . I know being on my own as well . What I do my little tip is be good and kind to yourself. Make a special meal for yourself. Have some relaxation time try to think of things positive.

The big step you have done is talking and we as a community are here to share and care.

You are not alone. Always some one here for a chat. Anytime.

Hope what happens the rest of the day is good for you.

Please take care.

@thespiceman