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I was diagnosed with hEDS and Autism only a few years ago.

AspieZebraAspieZebra Member Posts: 1 Listener
edited April 2019 in Disabled people
I was diagnosed with hEDS and Autism only a few years ago. I'm a wife and mum, in my 40's. My conditions are complex but mobility issues and chronic fatigue are the two most disabling challenges I'm dealing with. My daughter may have inherited one or both of these conditions and is currently awaiting autism assessment.

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger

    Hello @AspieZebra Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions who guide, advise and help new members who join the forum.

    Please have a look around our website. Feel free to join in discussions. We are friendly, care and share.

    Please ask if we can help and advise. Some one will know from our community or a member of our team.

    Please take care.

    @thespiceman

    Community Champion
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  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,746 Scope community team
    Hi @AspieZebra welcome to the community and thank you for sharing a bit about yourself.

    You might be interested to know that Scope has recently set up a new service called Navigate. Navigate provides a six week programme of online and telephone support to parents who have a child going through diagnosis or have a child who has recently been diagnosed with a disability (within 12 months). The aim is to provide parents of a child with a disability with emotional and practical support and help them navigate these early stages. It also gives parents a chance to talk through things and how they're feeling in a safe space.

    If you think this may be something that could benefit you please visit https://www.scope.org.uk/family-services/navigate or call 0808 801 0510. smile
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • LaughingLollyLaughingLolly Member Posts: 101 Pioneering
     :)  hi! 
    A laugh a day keeps the psychiatrist at bay. 
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