Travel advice: Fribomalgia../CFS/ME/spondylosis/ depression

DebbieN
DebbieN Community Member Posts: 11 Listener
edited July 2019 in Everyday life
Can anyone give any advice on giong on holiday.i have wheelchair assistant but have other issues that includes sensitivity to niose and light it's more a problem at airports.
Any advice is appreciated.

Thank you

Comments

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @DebbieN, whereabouts are you doing?

    I have really high sensitivity to light and wear sunglasses about 80% of the time. Is this something that may help?
  • DebbieN
    DebbieN Community Member Posts: 11 Listener
    I have reflective glasses that does allow light in my eyes they are ok I have a condition called Bebaritis . It's the niose the feeling of panic it's very hot deal with the hospital's and one train that I know have set up a quiet room for people like me which is absolutely brilliant..At the airport it's like nobody understands I know people are excited to be going on holiday..

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    @DebbieN, I can understand why an airport would be really be hard. Some airports do have quiet places (granted this is not very many), so it may be worth having a look.

    There also is sunflower lanyards for people with invisible conditions, again this may be worth looking into :) 
  • DebbieN
    DebbieN Community Member Posts: 11 Listener
    Thank you very much for information.its appreciated.?
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    No problem @DebbieN, have you already booked to go somewhere?
  • Mika
    Mika Community Member Posts: 9 Connected
    Hi Debbie, yes I also would suggest sunglasses. Would you perhaps be able to wear a head set with very quiet easy listing music, obviously only as loud as you can tolerate. I have to do this with my tinnitus. Have a fabulous holiday xx
  • Adrian_Scope
    Adrian_Scope Posts: 14,446 Online Community Programme Lead
    Hope it's a lovely holiday @DebbieN. :smile: