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Hi, my name is pjosiejo69!
Absolutely devastated... after being awarded DLA for 16 years for a progressive rare illness called Sapho Syndrome, I lost my indefinite DLA on the changeover to PIP. Have managed to work 16 hours a week for 20 years as a hca nurse for the NHS but have been off sick for months as am too ill. I have had a face to face - total lies throughout and 2 mandatory Reconsiderations, not even rechecked, and am waiting for a tribunal. As a result of losing DLA, I have also lost the disability element of working tax credit and therefore today have lost the rest of working tax credit without any warning! So now all I have to survive on his my half pay from work and ssp, which combined just covers rent and council tax and is £633 - lost £690. Absolutely devastated and so so scared of the future 😥xx