Hi, I'm a mother of daughter who will be 17 in January she has POTS — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.
Read our community guidelines and our community house rules.

Hi, I'm a mother of daughter who will be 17 in January she has POTS

Hiyalove
Hiyalove Member Posts: 1 Listener
edited December 2019 in Children, parents, and families
I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
· Share on FacebookShare on Twitter

Comments

  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    edited December 2019
    Hello  @Hiyalove   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide , advise help and support members of our community.

    Please if your daughter is not receiving any support or advice, guidance with her mental health issues.

    Please can I suggest the following charities.

    I have mental health issues and a disability used these three.

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    All charities offer floating support, benefit advice and help, well being and health.

    Do take clientele with additional problems or disabilities .

    As well mental health.

    Might not be in all areas.

    Support Organisation for POTS

    https://www.potsuk.org.

    General enquiries only Email [email protected]

    Advice, guidance.

    [email protected]

    Please if I can also add consider looking at our website, ask any questions.  Happy to answer, we are compassionate have empathy.

    Please if I can help with anything further please get in touch.

    Always supportive.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
    · Share on FacebookShare on Twitter
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,270 Disability Gamechanger
    edited December 2019
    Hi @Hiyalove - Welcome to the community & thank you for joining. I'm sorry to read about the problems your daughter is facing.
    I don't know if you've seen it, but here's a useful resource on PoTS: https://www.potsuk.org/
    I know a little about PoTS as it's often found in those that have my genetic disorder. There is an Autonomic Unit at the National Hospital for Neurology and Neurosurgery in London which sees patients from 18 years old, which might be of interest later.
    There's also this website, which has a section on PoTS. See: http://www.heartrhythmalliance.org/stars/uk/postural-tachycardia-syndrome-pots  Dr. Blair Grubb who has a short video on there is a great PoTS expert. Some time ago I was in touch with 2 of his USA patients who held him in enormous respect.
    I'll ask my friend @thespiceman to share his resources on mental health which may also help you.
    If you have any questions, please do say, & I look forward to chatting with you any time.
    Sorry, it takes me a long time to type, & I see the spiceman had already replied!



    · Share on FacebookShare on Twitter
  • Adrian_Scope
    Adrian_Scope Posts: 8,572

    Scope community team
    Great to have you with us @Hiyalove. How are you today? 
    Community Manager
    Scope

    Tell us how to make the community better for you. Complete our feedback form.
    · Share on FacebookShare on Twitter
  • Han_
    Han_ Member Posts: 151 Pioneering
    Hi @Hiyalove and thank you for your post. I would like to welcome you to the community. Please feel free to post on any discussions you find interesting. 

    Han
    · Share on FacebookShare on Twitter
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,557 Disability Gamechanger
    Welcome to the community @Hiyalove! Great to have you with us. :)

    How is your daughter (and you) doing at the moment?
    Scope

    · Share on FacebookShare on Twitter
  • matthew2909
    matthew2909 Member Posts: 22 Connected
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
    · Share on FacebookShare on Twitter
  • calcotti
    calcotti Member Posts: 5,312 Disability Gamechanger
    matthew2909 said:
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
    This thread is 18 months old and the original poster has not been on the site since then.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.