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Hi, I'm a mother of daughter who will be 17 in January she has POTS

HiyaloveHiyalove Member Posts: 1 Listener
I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited December 2019
    Hello  @Hiyalove   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide , advise help and support members of our community.

    Please if your daughter is not receiving any support or advice, guidance with her mental health issues.

    Please can I suggest the following charities.

    I have mental health issues and a disability used these three.

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    All charities offer floating support, benefit advice and help, well being and health.

    Do take clientele with additional problems or disabilities .

    As well mental health.

    Might not be in all areas.

    Support Organisation for POTS

    https://www.potsuk.org.

    General enquiries only Email [email protected]

    Advice, guidance.

    [email protected]

    Please if I can also add consider looking at our website, ask any questions.  Happy to answer, we are compassionate have empathy.

    Please if I can help with anything further please get in touch.

    Always supportive.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
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  • chiariedschiarieds Member Posts: 7,968 Disability Gamechanger
    edited December 2019
    Hi @Hiyalove - Welcome to the community & thank you for joining. I'm sorry to read about the problems your daughter is facing.
    I don't know if you've seen it, but here's a useful resource on PoTS: https://www.potsuk.org/
    I know a little about PoTS as it's often found in those that have my genetic disorder. There is an Autonomic Unit at the National Hospital for Neurology and Neurosurgery in London which sees patients from 18 years old, which might be of interest later.
    There's also this website, which has a section on PoTS. See: http://www.heartrhythmalliance.org/stars/uk/postural-tachycardia-syndrome-pots  Dr. Blair Grubb who has a short video on there is a great PoTS expert. Some time ago I was in touch with 2 of his USA patients who held him in enormous respect.
    I'll ask my friend @thespiceman to share his resources on mental health which may also help you.
    If you have any questions, please do say, & I look forward to chatting with you any time.
    Sorry, it takes me a long time to type, & I see the spiceman had already replied!



  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,932

    Scope community team

    Great to have you with us @Hiyalove. How are you today? 
    Senior Community Partner
    Scope

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  • Han_Han_ Member Posts: 154 Pioneering
    Hi @Hiyalove and thank you for your post. I would like to welcome you to the community. Please feel free to post on any discussions you find interesting. 

    Han
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @Hiyalove! Great to have you with us. :)

    How is your daughter (and you) doing at the moment?
    Community Partner
    Scope

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    Complete our feedback form to help us to improve your community.
  • matthew2909matthew2909 Member Posts: 16 Connected
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
  • calcotticalcotti Member Posts: 1,188 Pioneering
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
    This thread is 18 months old and the original poster has not been on the site since then.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
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