Hi, I'm a mother of daughter who will be 17 in January she has POTS

Hiyalove
Hiyalove Online Community Member Posts: 1 Listener
edited December 2019 in Families and carers
I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 

Comments

  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    edited December 2019
    Hello  @Hiyalove   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide , advise help and support members of our community.

    Please if your daughter is not receiving any support or advice, guidance with her mental health issues.

    Please can I suggest the following charities.

    I have mental health issues and a disability used these three.

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    All charities offer floating support, benefit advice and help, well being and health.

    Do take clientele with additional problems or disabilities .

    As well mental health.

    Might not be in all areas.

    Support Organisation for POTS

    https://www.potsuk.org.

    General enquiries only Email info@potsuk.org

    Advice, guidance.

    support@potsuk.org.

    Please if I can also add consider looking at our website, ask any questions.  Happy to answer, we are compassionate have empathy.

    Please if I can help with anything further please get in touch.

    Always supportive.

    Please take care.

    @thespiceman


  • chiarieds
    chiarieds Online Community Member Posts: 16,682 Championing
    edited December 2019
    Hi @Hiyalove - Welcome to the community & thank you for joining. I'm sorry to read about the problems your daughter is facing.
    I don't know if you've seen it, but here's a useful resource on PoTS: https://www.potsuk.org/
    I know a little about PoTS as it's often found in those that have my genetic disorder. There is an Autonomic Unit at the National Hospital for Neurology and Neurosurgery in London which sees patients from 18 years old, which might be of interest later.
    There's also this website, which has a section on PoTS. See: http://www.heartrhythmalliance.org/stars/uk/postural-tachycardia-syndrome-pots  Dr. Blair Grubb who has a short video on there is a great PoTS expert. Some time ago I was in touch with 2 of his USA patients who held him in enormous respect.
    I'll ask my friend @thespiceman to share his resources on mental health which may also help you.
    If you have any questions, please do say, & I look forward to chatting with you any time.
    Sorry, it takes me a long time to type, & I see the spiceman had already replied!



  • Adrian_Scope
    Adrian_Scope Posts: 11,720 Online Community Programme Lead
    Great to have you with us @Hiyalove. How are you today? 
  • Han_
    Han_ Online Community Member Posts: 151 Empowering
    Hi @Hiyalove and thank you for your post. I would like to welcome you to the community. Please feel free to post on any discussions you find interesting. 

    Han
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @Hiyalove! Great to have you with us. :)

    How is your daughter (and you) doing at the moment?
  • matthew2909
    matthew2909 Online Community Member Posts: 22 Contributor
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
  • calcotti
    calcotti Online Community Member Posts: 10,005 Championing
    matthew2909 said:
    Hiyalove said:
    I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx 
    hey how are you im matthew 
    This thread is 18 months old and the original poster has not been on the site since then.

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