Undiagnosed and rare conditions
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Cubital Tunnel Syndrome experienced advice needed!

Crumbled72Crumbled72 Member Posts: 40 Courageous
Hello!
I have done my own research, since I have waited for my Orthopedics / hand specialist appointment since September 2019, and well.. No idea how long it will still take before I get my letter and time.

I found out that the symptoms I've had with my both hands fit the symptoms in Cubital tunnel syndrome 100%.
I already have diagnosed OA in my knees, hips, feet and right hand, DDD in my lower back etc.
Last October when the colder weather came my problems started which I thought are all connected to my OA, but my GP just told to wait for my appointment. 
My right hand got so bad that couldn't even hold a pencil. Now after months situation has calmed down but aches and pains come and go constantly. 

My symptoms have been following:
- my arms and hands get numb and like blood wouldn't circulate if I keep them too long bent.. Even only in 90° angle
- Feeling of tingling, pins & needles in my fingertips, especially in pinky- and ring-fingers
- when the nerve pain gets worse it feels like someone is pushing something sharp underneath my fingernails
- without stopping doing anything and just sitting for ages arms straightened the feeling will spread fast towards my elbows and them my elbows and inner arm hurts as well

So you who have this... Could my maybe vague self-diagnosis be correct?

What I understood OA and Arthritis as well as my diabetes are both also illnesses that might induce these problems and this syndrome to come. 

Idk... Please comment and/or educate me.

Thank you for answering ❤️😊
All you need is L❤️VE ..and oxygen 😝

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @Crumbled72, thank you for taking the time to share this with us, I'm sorry to hear it has been causing you so much pain.

    Unfortunately we are unable to offer medical advice due to not being professionals. However, I hope you will be able to connect with others.  
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    Scope

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  • Crumbled72Crumbled72 Member Posts: 40 Courageous
    Just a quick update if someone is wondering similar kind of symptoms.

    Finally had my orthopaedic appointment, and I was right with my assumption. Cubital Tunnel syndrome in both wrists. Also got referred to neuro-studies (sorry, forgot the official name of the department lol) to see if it’s also in my elbows.

    so if you have similar symptoms, contact your GP.
    All you need is L❤️VE ..and oxygen 😝
  • Tori_ScopeTori_Scope Posts: 4,099

    Scope community team

    Thanks for the update @Crumbled72 :) 
    Online Community Coordinator, she/her

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