Has anyone experienced PAs or agencies in caring for a child with physical and mental disabilities?

SallyDavis

Hi my name s Sally I recently started caring for my cousin as a relative passed away it seems alot to understand but it helps reading about your experiences with pa or agency thankyou 

cupcake88

Hello sally how are you this evening ? Welcome to the forum xx

SallyDavis

Hello fine thankyou 

steve51

Hi @SallyDavis

Good Evening it’s great to see today.

I am one of the Community Champion’s here at Scope.

Please let me know if there’s anything that I can help you with???

@steve51

chiarieds

Hi @SallyDavis - & welcome to the community, Sally. It's lovely that you have taken on caring for your cousin. Is it OK to ask what their problems are? Perhaps then you might get applicable advice.

SallyDavis

My cousin was starved of oxygen at birth so she is very physically and mentally disabled 

steve51

Hi @SallyDavis

I am very very sorry to hear about that?

Is there any help/support that I can offer you ?

@steve51

SallyDavis

At the moment getting all sorts of things in place as she never has had any assessments or any support at all she is greiving the loss of her mum who cared for her all her life but I am finding it very challenging at times ?

steve51

Hi @SallyDavis

How are you coping with everything that needs to be in place.

Are you looking at having her accessed?

Now you have reached out to us we will all offer you both Help/Support.

@steve51

SallyDavis

Yes she has been accessed
but it's all very new too me 

steve51

Hi @SallyDavis

That’s good news.

Please please let me know if there’s anything that I can offer you???

@steve51

SallyDavis

Well to be honest ear muffs would be good as my cousin is constantly grinding her teeth

steve51

Yes I had the same problem with grinding my teeth after my Stroke but I was never asked to get any ear muffs.

I had to have a rubber mould made to wear at nighttime to stop the grinding.

@steve51

SallyDavis

Maybe I could get one for my cousin 

steve51

Hi @SallyDavis

Yes I had to get mine from the Dental Hospital.

@steve51

chiarieds

Hi again @SallyDavis -  thank you very much for replying, tho I'm sorry to read how profoundly your cousin is affected. There's some info here on Scope that may be helpful.

Please see: https://www.scope.org.uk/advice-and-support/preparing-for-carers-assessment/   as you mention PA or an agency.

Within that link you will also find a link to 'carersUK' (https://www.carersuk.org/) which may prove helpful, as you also need support in helping your cousin, Sally.

It certainly is a lot to take onboard at once; she's grieving her Mum, & this is all new to you, so hope some of this info will help.

Please do ask any questions about any difficulties you're facing, (I see Steve has already advised), & anything else you need to know. Please let us know how you're getting on, & chat here any time.

Chloe_Alumni

Hi @SallyDavis, just wanted to reach out and see if there is anything else we can do to help.

Can I just clarify, was it a needs assessment which your cousin had? You also would be entitled to a carers assessment if you would be supporting her.

I imagine this is a big change for you both and cannot be easy. I hope the community can support you both.

janer1967

Hi @SallyDavis Welcome t o the community, it must be a very challenging time for you and your cousin and you are doing the very best you can in a difficult time.

Pleaser ask any questions you have we are here to support and guide you to the best places we always have somebody who knows the answer or where to find it

Take care and I wish you the best