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Hi, my name is scootergirly!
scootergirly
Member Posts: 18 Listener
I have neursarcoidosis was diagnosed ms first 6 years ago but changed it last year have lots of lesions on brainstem struggle to walk
Comments
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Hi and welcome
Thanks for telling us a bit about you
Feel free to join in or ask any questions
You may like to start in our coffee lounge or recent discussions -
Welcome to the community @scootergirly how are you feeling at the moment?
Disability Gamechanger - 2019 -
I’m fine just bored going mobility scooter shopping on Sunday for valentines although I’m shielding woo to be 45 and need one
how are you? -
I am not too bad thanks I would love to shopping for a new powerchair at some point. Have you got a make/model in mind? Disability Gamechanger - 2019
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Li tech marathon looks good mil is treating me
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Hi, I’m new as well. Good luck shopping!
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Did you have any luck with your new purchase?
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Going on Sunday to a showroom so might come away wanting something different
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Yes I bet it’s good to have a good look around. I’m thinking of organizing an online fundraising event, which charity do you think would be a good one to support?
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So many to choose from I have neursarcoidosis but so rare had to raise money for sarcoidosis on my birthday
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Those are rare, sometimes it’s better to help the smaller ones though. It’s an online life drawing event so I’m a bit nervous!!
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Hello @scootergirly
Welcome to the community, how are you today?
I hope you are receiving all the support you need from your GP to manage your neursarcoidosisOnline Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
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Gp doesn’t do anything see a neurologist
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Welcome to the community @scootergirly I'm glad that you're able to see a neurologist.
Let us know how you get on with the shopping today!Online Community Coordinator, she/her
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to tell us how we're doing? Complete our feedback form now. -
Got a li tec neon comes to pieces fits in my car heaviest piece is 10 kg so I can lift it and go out alone again regaining some independence ?
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Welcome @scootergirly ...I,m glad to read you are more mobile now ??
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