Hi, my name is scootergirly!

scootergirly
scootergirly Community member Posts: 18 Connected
in Start here and say hello!
I have neursarcoidosis was diagnosed ms first 6 years ago but changed it last year have lots of lesions on brainstem struggle to walk 

Comments

  • janer1967
    janer1967 Community member Posts: 21,922 Championing
    Hi and welcome 

    Thanks for telling us a bit about you 

    Feel free to join in or ask any questions 

    You may like to start in our coffee lounge or recent discussions 
  • Ami2301
    Ami2301 Community member Posts: 7,879 Championing
    Welcome to the community @scootergirly how are you feeling at the moment? :)
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    I’m fine just bored going mobility scooter shopping on Sunday for valentines although I’m shielding woo to be 45 and need one 
    how are you?
  • Ami2301
    Ami2301 Community member Posts: 7,879 Championing
    I am not too bad thanks :) I would love to shopping for a new powerchair at some point. Have you got a make/model in mind?
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    Li tech marathon looks good mil is treating me 
  • Tom70
    Tom70 Community member Posts: 39 Connected
    Hi, I’m new as well. Good luck shopping!
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    Hi 
  • Tom70
    Tom70 Community member Posts: 39 Connected
    Did you have any luck with your new purchase?
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    Going on Sunday to a showroom so might come away wanting something different 
  • Tom70
    Tom70 Community member Posts: 39 Connected
    Yes I bet it’s good to have a good look around. I’m thinking of organizing an online fundraising event, which charity do you think would be a good one to support?
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    So many to choose from I have neursarcoidosis but so rare had to raise money for sarcoidosis on my birthday 
  • Tom70
    Tom70 Community member Posts: 39 Connected
    Those are rare, sometimes it’s better to help the smaller ones though. It’s an online life drawing event so I’m a bit nervous!!
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @scootergirly

    Welcome to the community, how are you today? 

    I hope you are receiving all the support you need from your GP to manage your neursarcoidosis 
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    Gp doesn’t do anything see a neurologist 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,443 Championing
    Welcome to the community @scootergirly :) I'm glad that you're able to see a neurologist.

    Let us know how you get on with the shopping today!
  • scootergirly
    scootergirly Community member Posts: 18 Connected
    Got a li tec neon comes to pieces fits in my car heaviest piece is 10 kg so I can lift it and go out alone again regaining some independence ?
  • Seanchai
    Seanchai Community member Posts: 396 Pioneering
    Welcome @scootergirly ...I,m glad to read you are more mobile now ??

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