Hi, my name is scootergirly!

scootergirly · February 12

I have neursarcoidosis was diagnosed ms first 6 years ago but changed it last year have lots of lesions on brainstem struggle to walk

janer1967 · February 12

Hi and welcome

Thanks for telling us a bit about you

Feel free to join in or ask any questions

You may like to start in our coffee lounge or recent discussions

Ami2301 · February 12

Welcome to the community @scootergirly how are you feeling at the moment?

scootergirly · February 12

I’m fine just bored going mobility scooter shopping on Sunday for valentines although I’m shielding woo to be 45 and need one
how are you?

Ami2301 · February 12

I am not too bad thanks

I would love to shopping for a new powerchair at some point. Have you got a make/model in mind?

scootergirly · February 12

Li tech marathon looks good mil is treating me

Tom70 · February 12

Hi, I’m new as well. Good luck shopping!

scootergirly · February 12

Hi

Tom70 · February 12

Did you have any luck with your new purchase?

scootergirly · February 12

Going on Sunday to a showroom so might come away wanting something different

Tom70 · February 12

Yes I bet it’s good to have a good look around. I’m thinking of organizing an online fundraising event, which charity do you think would be a good one to support?

scootergirly · February 12

So many to choose from I have neursarcoidosis but so rare had to raise money for sarcoidosis on my birthday

Tom70 · February 12

Those are rare, sometimes it’s better to help the smaller ones though. It’s an online life drawing event so I’m a bit nervous!!

Ross_Scope · February 13

Hello @scootergirly

Welcome to the community, how are you today?

I hope you are receiving all the support you need from your GP to manage your neursarcoidosis

scootergirly · February 13

Gp doesn’t do anything see a neurologist

Tori_Scope · February 14

Welcome to the community @scootergirly

I'm glad that you're able to see a neurologist.

Let us know how you get on with the shopping today!

scootergirly · February 14

Got a li tec neon comes to pieces fits in my car heaviest piece is 10 kg so I can lift it and go out alone again regaining some independence 😊

Seanchai · February 14

Welcome @scootergirly ...I,m glad to read you are more mobile now 👍🙂

Hi, my name is scootergirly!

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