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Hi, my name is scootergirly!
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scootergirly
Community member Posts: 18 Connected
I have neursarcoidosis was diagnosed ms first 6 years ago but changed it last year have lots of lesions on brainstem struggle to walk
Comments
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Hi and welcome
Thanks for telling us a bit about you
Feel free to join in or ask any questions
You may like to start in our coffee lounge or recent discussions -
Welcome to the community @scootergirly how are you feeling at the moment?
Disability Gamechanger - 2019 -
I’m fine just bored going mobility scooter shopping on Sunday for valentines although I’m shielding woo to be 45 and need one
how are you? -
I am not too bad thanks I would love to shopping for a new powerchair at some point. Have you got a make/model in mind? Disability Gamechanger - 2019
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Li tech marathon looks good mil is treating me
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Hi, I’m new as well. Good luck shopping!
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Did you have any luck with your new purchase?
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Going on Sunday to a showroom so might come away wanting something different
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Yes I bet it’s good to have a good look around. I’m thinking of organizing an online fundraising event, which charity do you think would be a good one to support?
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So many to choose from I have neursarcoidosis but so rare had to raise money for sarcoidosis on my birthday
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Those are rare, sometimes it’s better to help the smaller ones though. It’s an online life drawing event so I’m a bit nervous!!
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Hello @scootergirly
Welcome to the community, how are you today?
I hope you are receiving all the support you need from your GP to manage your neursarcoidosisOnline Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Gp doesn’t do anything see a neurologist
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Welcome to the community @scootergirly I'm glad that you're able to see a neurologist.
Let us know how you get on with the shopping today! -
Got a li tec neon comes to pieces fits in my car heaviest piece is 10 kg so I can lift it and go out alone again regaining some independence ?
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Welcome @scootergirly ...I,m glad to read you are more mobile now ??
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