No support from any authorities

HayzB4

Hello my name is Hayleigh I was diagnosed 5/6 years ago with heart lung and brain disease 10 years ago I was in a coma for 6 weeks malignant neuroleptic syndrome CADISIL? Non epileptic attack disorder I’ve had strokes MS and many other things I have not had any appointments any check ups no scans no tests nothing! What can I do? I’ve been told it’s incurable and I’m left alone with no support from anyone this is not right is it? I’d love to hear from anyone who has been through the same or similar things thanks x

Tori_Scope

Hi @HayzB4  

Thanks for making a post about this, as I'm sure it's not too easy to speak about. I'm really sorry to hear that you've been left without any support, despite all that you've been through. That sounds really tough. 

This isn't something I've personally been through, so I can't offer any support in that sense. I hope that another member who's been through something similar will see your post and reach out to you. 

If you could create a 'wish list', what kind of support would you like to receive? For example, would you like more help to manage your pain, or more support at home? 

SueHeath

Morning @HayzB4 welcome to this great group.
I'm sorry i do not have any answers for you, i just didn't want you to think we hadn't noticed you.
I think Tori's idea of making a wish list is great and if you are willing to post it on here i am sure it would create a lot of response and may answers for you. Good luck and i look forward to seeing you around.