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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is percivalsue! anyone else have a tethered cord and have stories to share?

percivalsue

Hi everyone

I have been diagnosed with a tethered cord at the age of 63

The neurosurgeon is trying to it me off surgery as he says it will not ease my symptoms

I’d be grateful of any shared thoughts and stories

Feeling pretty 😠

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Comments

Albus_Alumni

Hey there @percivalsue and welcome to the community. 😁

Thanks for sharing a bit about your situation, I understand that can be very difficult. I'm hoping some community members will be able to share some thoughts with you soon.

channer

Hello. I also have a tethered cord since birth (scoliosis and Sprengels shoulder) Symptoms are leg weakness and fatigue, a constant tingle in both legs and feet, shooting pain in both legs, lower lumber pain, bladder urgency/frequency. How is it effecting you?

chiarieds

Hi @percivalsue - & welcome to the community. I've just come across your post due to @channer commenting. As they rightly say a tethered cord is usually based on the following signs & symptoms:

● urinary dysfunction (including incontinence, urgency and incomplete bladder emptying)
● Low back pain
● Numbness on the soles of the foot/feet
● Weakness in the leg(s)
●Abnormalities such as curvature of the spine (scoliosis) and foot deformities, e.g. club foot (talipes equinovarus)