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Hi
I was diagnosed with PXE when I was 22 in 1994. I just would really like to be in touch with other sufferers, to exchange experiences and how we get along.
Hi @Chocoholic160 and welcome to the forum! 😊 Thank you for sharing. It is a lovely community of people who are really knowledgeable and supportive. Our Coffee Lounge is a great place to start socialising. I hope you enjoy it here.
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