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We want to hear from you: please tell us about your experience of the online community.

My introduction

Ashers87

Hi my names Ash!

I'm new to the community and have been living with chronic fatigue syndrome for nearly 6 years. I run my own business in painting and decorating and pretty much deal with this condition on my own and I admit I feel quite lonely with it. having said that I have family that kind of understand and are supportive. I'm here to share my journey and understand others as well as taking on advice and tips. I do feel as though Iam one of the lucky ones with this condition as I'm still working and do have some good days , weeks or months but at the same time some dreadful weeks or months. I work with a homeopathic doctor & a kinesiologist whom have been great support.

Thank you For taking this time to read my introduction and I look forward to hopefully talking to some new people

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Comments

Bluebell21

Hi @Ashers87 welcome to the Community. I hope you enjoy your time on the forum. Any questions just ask.

Thank you for telling us something about yourself.

We are a friendly and supportive forum, have a look around and join in when you are ready.

Take care.

luvpink

@Ashers87

A very warm welcome to the community.

Rosie_Scope

Welcome to the community @Ashers87! Thanks for telling us a little about yourself. It can be so isolating living with chronic illness when you're surrounded by people who don't quite understand. I hope the community can be a place where you can connect with others who know what it's like ☺️

Have you always run your own business?

Ashers87

@Rosie_Scope thank you

Yes I have pretty much for nearly 20 yrs , I'm only a small business but it's something I don't want to give up

Mary_Scope

A big hello from me @Ashers87 😊

Mike_Whovian

https://forum.scope.org.uk/discussion/144964/my-introduction

Hi @Ashers87 😊

So nice to meet you! I can imagine how tough managing chronic fatigue syndrome while running your business must be. It’s great you have supportive family and your health team 💛

I’d love to be a friend here and share experiences. I know it can’t be easy, but looking forward to chatting more and supporting each other 😊🌿

lily84

Hi asher, welcome, I hope you find lots of help and support on here. As a long term sufferer of cfs and fibro and other conditions, I understand the difficulties of dealing with it all and the inability for some people to truly understand how debilitating it can be or the loneliness of it all but there are always people here to talk and listen.

Ashers87

@Mike_Whovian Thanks for the message, it would be great to share stories etc, do you suffer with the same condition?

Mike_Whovian

https://forum.scope.org.uk/discussion/comment/1112540#Comment_1112540

I’d really enjoy sharing stories and experiences with you. No, I don’t deal with the same condition, but I’m always curious to hear how others manage and cope. How has your journey been so far? 😊💬

Ashers87

@Mike_Whovian it's been a bit if a rollecoaster really in some ways 6 years has felt like 6days and some times it feels like a lifetime, especially on those weeks or months when things are pretty bad! I'm quite a stubborn person so I've tried to keep going and do what I can but without over doing it. I've learnt alot though I'm still learning. Can I ask what condition it is you have and how long have you been suffering?