nav[aria-label="Primary Navigation"] { padding: 0; & ul { list-style: none; width: 100%; display: flex; flex-direction: row; justify-content: start; align-items: start; gap: 30px; padding: 0; & li { margin: 0; } & ul li { list-style: none; } } }

We want to hear from you: please tell us about your experience of the online community.

Hi, my name is mom3!

mom3

Hi, I’m new here.
I have children with special needs both under 10 years and I’ve been feeling really overwhelmed and alone.
I have my mom and husband and still feel alone , and some days are just very hard.
I don’t even know exactly what I need right now—maybe just to know I’m not the only one feeling like this.
If anyone has felt the same, I’d really appreciate hearing from you.

Find more posts tagged with

Comments

Bluebell21

Hi @mom3 welcome to the Community. I am sorry you are feeling overwhelmed and alone.

Are you able to have time for yourself when someone else is able to care for your children, like go to the hairdressers, or meet a friend for a chat and a coffee? Just for a couple of hours once a month.

It is important that you also look after yourself. Sometimes we are just swallowed up and are no longer seen as ourselves. You are your children's mum, your husband's wife and your mum's daughter. You are also yourself.

We have a Section Families and Carers under Categories which might be of interest to you.

I have also tagged @Mary_Scope who is an Adviser - Children and Family Specialist. She is not working today, but will pick your post up when she is next in.

Please take care of yourself.

mom3

Thank you @Bluebell21 thank you for responding and I look forward to hearing from @Mary_Scope ,I need this.

R0b3rt

I felt like this yesterday when I had my 2. I was completely burnt out and struggling to meet my own needs never mind the needs of 2 children. I don't even have them here fulll time any more so I know how hard it must be. Hope you manage to make some time for yourself 🙏

Bluebell21

Hi @Mary_Scope are you able to add anything to help.

Thanks

Mary_Scope

Hi @mom3 and a warm welcome to the community from me!

Thank you for telling us a little bit about yourself,.

Do you have much support around you at the moment? Are you part of any local parent/carer groups for parents of disabled children?

You're definitely not alone in how you feel, it is really common to feel overwhelmed and alone but I hope you find this community to be a space where you're able to feel a bit more connected as I know we do have a lot of parent carers on here.

I'm just wondering if you have had a needs assessment before? You can request one of these from your local authority and sometimes these can lead to further support such as short break funding or direct payments you can use for more help and support.

Also, depending on the ages of your children, there is also Home Start which is a great organisation who help families with children under 5 (sometimes older, depending on your location). They will match you with a volunteer that can provide emotional and practical support.

mom3

@Mary_Scope I thank you so much I will look into that, I do need the e tra support but I have serious trust issues as 1 of mine is non verbal, I'm so scared to let him out of my sight,it took me a lot to let him into school but I had to I need to just convince myself that it needs to be done and I can't always be with him ,this is so hard for me.

mom3

@R0b3rt

Thank you.

Component react.suggestedcontent had an error.

The value must be greater than or equal to 1.

Sign in or register for free

Get more out of your online community by signing in or registering