Hi, my name is faeriequeen! — Scope | Disability forum

Hi, my name is faeriequeen!

faeriequeen
faeriequeen Member Posts: 9 Listener
I’m new to here been unable to work for 3 years due to chronic pain and no feeling in my left leg. I’m in bed today as pain is considerably worse today! 

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    Hi @faeriequeen, welcome to the community! Great to have you here, sorry to hear it's a high pain day today though. You may be particularly interested in our dealing with chronic pain discussions. Do get involved, and let us know if we can be of any assistance.
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Thank you Pippa x
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @faeriequeen

    Good Evening & Welcome!!!!!

    I have had “Chronic Pain” since 2005.

    I do hope that you are having a better day today ??

    Please please let me know if there’s anything that I can help/support you with ????

    Many thanks.
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,682 Disability Gamechanger
    Welcome to the community @faeriequeen

    Scope
    Senior online community officer
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Thank you steve51. Not been good all week but had a hospital appointment with pain clinic today and they have told me I have scarring from my operations and they are going to do an operation to try and clear some of the scarring. This is the first time I have had a dr that has told me he can/will help me!! I’m so happy!!! ☺️😊
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Thank you Sam x
  • Circe
    Circe Member Posts: 61 Courageous
    Hi, I too have chronic pain, it's ****. I've just learned about the Spoon thing on here in a way to describe your pain days /energy /streggt resources. I'm finding it easy to say to friends now and family, I've run out of spoons please leave a message and call back tommorow lol. Having an invisible disablement is a challenge because most folk don't believe you. I am looking into a disabled ID card companies so I can shove something into idiots faces when they tut at me sitting in the disabled seats on the bus, when coworkers and customers comment 'I'm sitting down on the job' etc...so just a warning lol as well as battling your disability you have pleabs to deal with to just because you don't look ill. Well, that's my experience. 
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @faeriequeen

    That sounds great I am so please for you.

    Can you please keep us up to speed with things????I

    If there is anything that I can help/support you with please please let me know.
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Thank you @steve51
    I get no help from the disability. I had PIP but they stopped it as they said I wasn’t ‘bad’ enough!! 
    Anyone know where I can get help on benefits? the doctor said he would write me a supporting letter.
    @Circe you are right people always make judgements my son has autistism and the amount of people who say ‘he’s naughty’. 😡
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Thank you @steve51
    I get no help from the disability. I had PIP but they stopped it as they said I wasn’t ‘bad’ enough!! I need to pay someone now to help me do housework and gardening but I can’t afford it. I am at the end of my tether 😢
  • Circe
    Circe Member Posts: 61 Courageous
    Tone honest om not holding my breath ei about claiming for pips. 
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    Everything is just so hard in dwp land! I’ve been on the phone all morning to them and they said my claim has crashed!!! ????
  • Circe
    Circe Member Posts: 61 Courageous
    I could not get through yesterday for ages, mine has been delayed because the hopeless local Jobcentre never sent of my ID I took in so I'm trying to complain but couldn't get them to answer the bl phone so I'm now delayed another month waiting for the forms let alone the length of time it takes processing it all. They purposely make it difficult I believe in order to deter claiming.
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
    @Circe I think you might be right. I’m still waiting for a 48hr call back from last Thursday!! They told me that they are ‘a bit behind’ I was a nurse and I wonder how they’d feel if I came to their bed and said ‘sorry we are a bit behind, so we can’t see you until next week!! ‘ 😝
  • Richard_Scope
    Richard_Scope Posts: 2,948

    Scope community team

    Hi @faeriequeen
    A very warm welcome to the Community!
    Please make yourself at home!

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • faeriequeen
    faeriequeen Member Posts: 9 Listener
  • Circe
    Circe Member Posts: 61 Courageous
    I've had to post of my ID but it's now come back to me and I am waiting on the forms now tbey(DWP) has allowed me to apply for them finally.So the process is at last starting. I'm not optimistic really but you have to try  I've also had my new Access ID card, I'm glad I now have something to show folk when they get in my face. I've yet to look T the other benefits it gives me bur I recommend it as it's something visual to Confirm you have certain needs. Quick and easy process too. 

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