Hi, my name is shazza1uk!
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shazza1uk
Online Community Member Posts: 2 Listener
Hi I've just joined up, I'm 54 today & we've just had a laugh at me trying & failing to blow out the candles on my birthday cake because I don't have enough puff. I have Ehlers Danlos Syndrome & a rare complication that is causing my diaphragm to fail & no one knows what to do to help on 12th of October I'm going to see another consultant who thinks using a c pap or bi pap machine might at least give me a better quality of life. I've spent most of the past 3yrs in bed so the internet is how I participate in the big wide world, so hello everyone how are you? x
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Comments
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Hi shazza1uk welcome to the Scope community and sorry to hear about your condition. I'm fine thanks and I'm shore the rest of us are in our own way!0
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Hi @shazza1uk
Welcome to the community! Happy Birthday!! I hope you get some answers, please let us know how you get on and let us know if there is anything that we can do to help you!0 -
Hi @shazza1uk, a warm welcome to the community and a huge happy birthday for yesterday! I hope you had the loveliest day possible. We have other members with EDS on the community, so do get involved with our discussions when you feel up to it!0
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