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Hi, my name is shazza1uk!
Hi I've just joined up, I'm 54 today & we've just had a laugh at me trying & failing to blow out the candles on my birthday cake because I don't have enough puff. I have Ehlers Danlos Syndrome & a rare complication that is causing my diaphragm to fail & no one knows what to do to help on 12th of October I'm going to see another consultant who thinks using a c pap or bi pap machine might at least give me a better quality of life. I've spent most of the past 3yrs in bed so the internet is how I participate in the big wide world, so hello everyone how are you? x