Hi, my name is sben!
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sben
Community member Posts: 43 Connected
Hi, how are you all
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Hi @sben welcome to the community. I am good thank you, how are you? Do you want to tell us a bit about yourself?
Scope
Senior online community officer -
Hi @sben
Welcome to the community! I am OK thanks how are you?Disability Gamechanger - 2019 -
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Hi all, I am good. Thank you for allowing me into the community.
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Welcome
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I have epilepsy, in which I have been suffering for over 7 years.
I also have a gait disorder, which has been affecting my mobility for over 6 years. -
Hello @sben and welcome back to the community, how are you?
Thank you for telling us about your conditions, do you receive enough support from health professionals to manage those? Are you coping well with them?
I hope to see you getting involved around the communityOnline Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Hi Ross_Scope
There is not much support at the moment for epilepsy and gait disorder.
It is very tricky to get support for neurology care. -
I'm sorry to hear that @sben, hopefully that changes soon. Despite the lack of support, how are you managing with your conditions?Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
It is quite difficult to deal with.
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Hi and welcome
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I'm sorry to hear that too @sben. Do you take any medication to help manage your epilepsy? Is your GP aware that you're finding it difficult to deal with?
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Hi Tori_Scope
I do take medication, and my GP is aware of the situation, but I still have a lot of seizures. -
Do you have a support network of friends or family around you who could check-in on you to make sure you're okay @sben?
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Hi Tori_Scope
I don't have any one, I am on my own.
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