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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is Boyden1964!

Boyden1964

Just like to say hi, and tell you a bit about myself. I have been diagnosed with arthralgia Raynaud's syndrome but still having tests because rheumatologist thinks there is something else going on but I also have other conditions as well. COPD urinary retention. To name but a few the hardest part is not being able to do what I used to do. Had to give up my job because I physically could not do it any longer. I have had to claim UC and was recently awarded LCWRA.hoping to learn a lot from this community and hope I can help answer anybody's questions if I can.

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Comments

Ami2301

Hi @Boyden1964 welcome to the community!

I have Raynauds too, it's awful!

steve51

Hi @Boyden1964

“Welcome”

I’m one off the “Community Champions” on our site/community.

I had to go through the same thing a few years ago now so if there’s anything that I can help you with?????

Yes it will be great to have you onboard.

You will find the “Online Community” very very active!!!!!!

Please please let me know if I can help you in anyway???????

Boyden1964

Thanks for the welcome I will probably take you up on your offer. Really struggling at the moment. Can't seem to shift this chest infection at the moment all due to this wonderful COPD I think I am winning but bam it's back again. But also due to Infection it is causing a really bad flare can hardly get up the stairs the legs I can deal with but the arms which I can hardly move I can't. Can I ask what disability you have or condition?

Boyden1964

Ami2301 said:

Hi @Boyden1964 welcome to the community!

I have Raynauds too, it's awful!

I only have it in my hands and feet at the moment.

steve51

Hi @Boyden1964

It’s my “Pleasure” I’m very very happy in helping you with this.

I had a Stroke “Bleed” in 1998 at the age off 32.

My Treatment to date has caused me more problems/disabilities

“Bummer”

Please let me know if there’s anything else that I can help you with????

Ami2301

Me too @Boyden1964 and my legs aswell

Boyden1964

Ami2301 said:

Me too @Boyden1964 and my legs aswell

I think I could have it in my legs as well noticed the other day had white blotches. Will have to get them checked. See my rheumatologist on the 20th November as not quite sure as I have varicose veins which have got worse. Have got an appointment with vascular surgeon on the 4th December hoping that they are bad enough to have them done on the NHS. Here's hoping.

Ami2301

Wish you all the best for your appointments!

Sam_Alumni

Welcome to the community @Boyden1964

Richard_Scope

Hi @Boyden1964

Welcome to Scope's community! It's great to have you here. Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!
If you need anything, just let us know.