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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is karenstar!

karenstar

Hello I am just karen but that name was taken lol.i am a manifesting carrier of DMD I am 57

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chiarieds

Hi @karenstar - Welcome to the community, Karen. Might I ask if you're referring to Duchenne Muscular Dystrophy?

I also have a genetic disorder which is usually transmitted in 50% of pregnancies. All of my children, & all 3 grandchildren have inherited it (Ehlers-Danlos Syndrome)!

Thank you for joining. Please have a look around, perhaps using the 'All groups' link on the right, & join in with any discussion.

Please, if you have any questions, just say, as hopefully you'll get some feedback/advice. Also chat or vent here any time!

thespiceman

Hello @karenstar pleased to meet you.

Thank you for joining and sharing.

I am one of the team of community champions. We guide, advise members of our community.

We are here to support and help you please ask any questions, have a look around our website.

Every one is friendly. You have met my friend @chiarieds .

I hope this might help you this organisation, has information, support.

https://www.musculardystrophy.org.uk.

Helpline 020 7803 4800

Please I hope you enjoy your time with the community.

Please take care.

@thespiceman

steve51

Hi @karenstar

Welcome to our online community/family ?

I am one off a team of Community Champion’s here at Scope.

We are all here to help & assist any new members.

Please come back to me if you need any further help??

@steve51

Connie00

Hello @karenstar

My Name is Connie00

I am one off the community Champion’s here at Scope. it’s really nice to meet you.

A very warm welcome to the Community. Thank you for reaching out to us, and thank you for sharing, it must be very difficult for you with your condition, I don't know to much about it except that you carry the gene that can cause DMD in your children, is that correct? I'm hoping that we have others on here that may be able to help or advise you.

We are always here to lend support, help, and advise where we can,

If we can be of any assistance to you please don’t hesitate to contact us

@connie00

gaz1960

Hi Karen,welcome to the site.

Adrian_Scope

Hi @karenstar and welcome to the community.