Hi, my name is Pappy2020! — Scope | Disability forum

Hi, my name is Pappy2020!

Pappy2020
Pappy2020 Member Posts: 2 Listener
Hi I'm almost 32 and single parent to 5 and 6 year olds (irish twins) <3 I'm currently 16 weeks pregnant and just been diagnosed with reversal physiological lordosis and DDD. Apparently no nerves involved but yet I experience the headaches dizziness left arm/leg weakness muscle spasms and twitching. The pain has been so bad its knocked me down onto my knees. I've just started physio through NHS and decided once a fortnight isnt enough so paying privately for chiropractor who has found other problems. Due to pregnancy pain relief is limited so is other treatments so I'm just wondering what advice anyone has. I decided to go self employed with beauty treatments to work around this condition as my current job as TA in specialist units was physically demanding. However I'm struggling just with daily normal tasks washing dishes or putting clothing to dry I get so angry and frustrated as I'm not able to do these things as quickly or efficiently. Even my thinking is deteriorating which has been put down to mum brain but feel it's more than this. Close family friends partner doesnt understand so either down play my symptoms call me lazy or just slow. It's so upsetting. Doctors told me the pain was in my head and I'd need CBT or to just get on with it (b4 diagnosis) now it's just contact MCAS. I'm not looking for sympathy just empathy. I'd just like my story heard and for someone to shed some light on this condition on how to manage it and what routes to take for extra help. I'd also like to help others in the future when I know more about this  o:)
Thanks to whoever takes their time to read my rant  ;)

Comments

  • janer1967
    janer1967 Member Posts: 12,880 Disability Gamechanger
    Hi @Pappy2020 Welcome to the community. I am sorry to hear about your problems, I am not able to to shed any light on your condition but hope some other members may be able to help get you the advice you need. Congratulations on your pregnancy  
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • Pappy2020
    Pappy2020 Member Posts: 2 Listener
  • Ails
    Ails Member Posts: 2,256 Disability Gamechanger
    Hi @Poppy2020 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I'm really sorry to hear of your health struggles and can appreciate how difficult these can be for you.  It must be a lot to keep active every day when you are not feeling your best and also have young children to look after, along with your pregnancy too.  I would suggest to just do things at your own pace, a task at a time and even if you space out chores over a few days that is fine as you need to allow time for your body to rest.  Don't be too hard on yourself as you can only do so much and I am sorry to hear that your family and friends aren't being understanding of your struggles.  Could you maybe go back to see another GP to get some more information on your condition and how it is affecting you?  Also is there anyone else amongst your family and friends who could provide some support to you?  I'm sorry I can't be of more help as I have no experience of these conditions, but there may be some of our members who do have experience and can share with you. 

    Please be aware that we are all here to support you on the Community and can provide friendship and a listening ear if you ever want to chat to us.  We all understand on here how stressful and difficult our own health circumstances can be at times so don't worry, you are not alone.  Please take care of yourself and keep in touch and let us know how you are getting on.  Congratulations on your forthcoming happy event and good luck when the new baby comes along!  Exciting times ahead!   If we can be of any support/help to you at all then you only just have to ask.  All the best.  :smile
    Winner of the Scope New Volunteer Award 2019.   :)

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