Hi, my name is Funboy1!

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Funboy1
Funboy1 Online Community Member Posts: 9 Connected
in Start here and say hello!
Hi I'm Mal 

I have MS  and I was speaking to my neuro this morning  , he suspects I also have MG ,  he wants some bloods and a face to face appointment  

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  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Funboy1

    Good Evening & Welcome to our online community/family.

    I am one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with?????

    @steve51
  • chiarieds
    chiarieds Online Community Member Posts: 17,127 Championing
    Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?
    Will you have long to wait to get a blood test, & then see your neuro?
  • Funboy1
    Funboy1 Online Community Member Posts: 9 Connected
    chiarieds said:
    Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?
    Will you have long to wait to get a blood test, & then see your neuro?
    Yeah Myasthenia gravis  , I was speaking on the phone to my neuro this morning , he is arranging  for a blood test to be done at my GP surgery and said we will have a face to face meeting in about three weeks  , finger crossed that I don't have it but  I most  the symptoms  , my left eyelid droops all the time and both droop when I'm tired 
  • chiarieds
    chiarieds Online Community Member Posts: 17,127 Championing
    Hi @Funboy1 - pleased you don't have too long to wait, & hope you don't have Myasthenia gravis too. Drooping eyelids can have many causes. I have this with both due to Ehlers-Danlos Syndrome, tho not all have this. Please keep in touch, & let us all know how you get on. My best wishes. :)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Funboy1

    Good Morning I do hope that you are having a good day??

    I have also got a rare neurological condition “Brain AVM”

    This causes the same symptoms as you are mentioning in your post.

    Please let me know if you need any further help.

    @steve51

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @Funboy1, I hope are able to get some answers soon. Please do let us know how you get on. :)
  • Funboy1
    Funboy1 Online Community Member Posts: 9 Connected
    Thank you everybody  :) 
    This has all come out of the blue , I have always put everything down to MS  
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi @Funboy1 Welcome to the community great you have joined us and I hope you get an appointment soon and find out the results. Good luck and I look forward to seeing you around and hear about your progress

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