nav[aria-label="Primary Navigation"] { padding: 0; & ul { list-style: none; width: 100%; display: flex; flex-direction: row; justify-content: start; align-items: start; gap: 30px; padding: 0; & li { margin: 0; } & ul li { list-style: none; } } }

We want to hear from you: please tell us about your experience of the online community.

Hi, my name is Funboy1!

Funboy1

Hi I'm Mal

I have MS and I was speaking to my neuro this morning , he suspects I also have MG , he wants some bloods and a face to face appointment

Find more posts tagged with

Comments

steve51

Hi @Funboy1

Good Evening & Welcome to our online community/family.

I am one of the Community Champion’s here at Scope.

Please please let me know if there’s anything that I can help you with?????

@steve51

chiarieds

Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?

Will you have long to wait to get a blood test, & then see your neuro?

Funboy1

chiarieds said:

Hi @Funboy1 - & welcome to the community, Mal. Am I correct in presuming by MG you mean Myasthenia gravis?
Will you have long to wait to get a blood test, & then see your neuro?

Yeah Myasthenia gravis , I was speaking on the phone to my neuro this morning , he is arranging for a blood test to be done at my GP surgery and said we will have a face to face meeting in about three weeks , finger crossed that I don't have it but I most the symptoms , my left eyelid droops all the time and both droop when I'm tired

chiarieds

Hi @Funboy1 - pleased you don't have too long to wait, & hope you don't have Myasthenia gravis too. Drooping eyelids can have many causes. I have this with both due to Ehlers-Danlos Syndrome, tho not all have this. Please keep in touch, & let us all know how you get on. My best wishes.

steve51

Hi @Funboy1

Good Morning I do hope that you are having a good day??

I have also got a rare neurological condition “Brain AVM”

This causes the same symptoms as you are mentioning in your post.

Please let me know if you need any further help.

@steve51

Chloe_Alumni

Welcome to the community @Funboy1, I hope are able to get some answers soon. Please do let us know how you get on.

Funboy1

Thank you everybody

This has all come out of the blue , I have always put everything down to MS

janer1967

Hi @Funboy1 Welcome to the community great you have joined us and I hope you get an appointment soon and find out the results. Good luck and I look forward to seeing you around and hear about your progress