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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is TheNamesZach!

TheNamesZach

Hey lovelies, as you can tell by my username, my name is Zach and I am 21! I am new to this so I don’t know what to put , but it would be lush to get to know you all!xx
Have a good day and keep smiling❤️

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steve51

Hi @TheNamesZach

Good Afternoon & Welcome to our online community/family.

I am one of the Community Champion’s here at Scope.

Please please let me know if you need any help getting around???

@steve51

TheNamesZach

@steve51 Hi Steve, lovely to hear from you, hopefully you will be the first of many comments(here’s me being positive lol!)

have you got any tips generally for first time site goers?

steve51

Hi @TheNamesZach

No probs my friend.

Yes you should be getting more post’s shortly.

Can you please let us know a bit more about yourself if you don’t mind?????

Yes please come back to me and I will try to point you in the right direction.

@steve51

leeCal

Hi @TheNamesZach I’ve posted on your other thread but hey! Welcome, it’s nice to meet you. ?

TheNamesZach

@steve51 , yes! I have cerebral palsy, hydrocelphus, epilepsy and I’m partially sighted/registered blind , in my spare time I’m a wheelchair basketball player! What about you?

TheNamesZach

@leeCal hi thank you! It’s nice to meet you too!

emmarenshaw

Welcome to the community @TheNamesZach

steve51

Hi @TheNamesZach

“Wow” that is fantastic my friend.

@steve51

TheNamesZach

emmarenshaw said:

Welcome to the community @TheNamesZach

Thank you x hope you’re well and keeping safe

emmarenshaw

@TheNamesZach I am thank you. I hope you’re well too. Please let me or any of the others know if you need anything or have any questions at all.

Ami2301

Welcome to the community @TheNamesZach I hope you're having a good weekend!

steve51

Hi @TheNamesZach

Yes I have had my left hand side taken by the first Stroke this includes my eye & ear and much more.

Then the 2nd bout has affected my right side leaving me with chronic pain 24/7.

So I no longer have a “Good Side”

@steve51

TheNamesZach

@Ami2301 thank you so much! It’s been very boring so far but joining this community has made it much more happier! How are you this weekend?

TheNamesZach

@steve51 I am so sorry to hear about that , i hope you are receiving the right treatments etc from the specialists?

chiarieds

Hi @TheNamesZach - I'd like to add my welcome to the community too, Zach. Many of us here on Scope have various problems, but we also have much in common such as neurological problems, chronic pain, etc.

I have a genetic disorder (Ehlers-Danlos Syndrome) but knew nothing about this for a long time. It affects my mobility + I also have neurological issues which in a few are associated with this.

After I qualified as a physio, I worked on a spinal injuries unit. I tried wheelchair table tennis, but was often resoundingly beaten by a tetraplegic who had his table tennis bat strapped to his hand. I also tried wheelchair basketball, where I was even worse. Would like to say my admiration for doing the latter; it's way harder than it looks!

As far as tips go about using this site, you can always chat here. Also should you wish, you can also make a new post by clicking on 'New discussion' close to the top of this page on the right. Other than that there are links at the top of the page to our virtual 'Coffee lounge' for a light-hearted chat, & also to 'Recent discussions,' both of which you are most welcome to join in with. Hope this helps, & you find this community helpful.

TheNamesZach

chiarieds said:

Hi @TheNamesZach - I'd like to add my welcome to the community too, Zach. Many of us here on Scope have various problems, but we also have much in common such as neurological problems, chronic pain, etc.
I have a genetic disorder (Ehlers-Danlos Syndrome) but knew nothing about this for a long time. It affects my mobility + I also have neurological issues which in a few are associated with this.
After I qualified as a physio, I worked on a spinal injuries unit. I tried wheelchair table tennis, but was often resoundingly beaten by a tetraplegic who had his table tennis bat strapped to his hand. I also tried wheelchair basketball, where I was even worse. Would like to say my admiration for doing the latter; it's way harder than it looks!
As far as tips go about using this site, you can always chat here. Also should you wish, you can also make a new post by clicking on 'New discussion' close to the top of this page on the right. Other than that there are links at the top of the page to our virtual 'Coffee lounge' for a light-hearted chat, & also to 'Recent discussions,' both of which you are most welcome to join in with. Hope this helps, & you find this community helpful.

Hi @chiarieds Thank you very much for sharing your wonderful story and I fully admire you for the role you do as a physio! I found with certain disability sports that you’re better at some of them then others, for me, I can’t imagine me playing wheelchair tennis any time soon! Haha!!

I’ve never actually heard of wheelchair table tennis though, is strapping the bat to his arm legal in that sport? I guess it was if it wasn’t fully able to function itself!

Thank you so much for the tips, is the virtual coffee room a live chat room? As I have no clue to look ? x

steve51

Hi @TheNamesZach

Don’t worry my friend.

Yes I have only got one specialist left now.

I had to have major stomach reconstruction a few years ago now.

They have made a channel from my belly button in to my bladder.

Due to the nerve damage in my bladder I need to empty it manually.

Unfortunately I need to have more surgery as the channel has become blocked.

How are things going this morning?????

@steve51

Ami2301

I'm not too bad thank you, I much prefer the weekdays as I find the weekends quite boring now!

TheNamesZach

@Ami2301 ah yes I get you! There’s not many weekend days is there! Plus in a normal situation , the shops are normally either packed or shut lol!

TheNamesZach

Hi @steve51 sorry for not replying sooner! I hope that after your next set of surgeries , that will be the last of them, in terms of my days , there’s not really much I do at the moment , but I do have several travelling plans around the UK planned out , hopefully!