Hi, my name is louise_96!

louise_96
louise_96 Online Community Member Posts: 1 Listener
in Start here and say hello!
Hello, my name is Sarah Louise and I live on the Isle of Man. I have recently been diagnosed FND I constantly have server lower leg pain, neck pain and struggle with weakness in my arms I currently work full time but I am struggling everyday. There is very limited resources on the Isle of Man so I am struggling to find help and people that have similar issues. I struggle to sleep at night so I’m exhausted all the time my mind goes into over drive at night and I think about all sorts of things. I’m worried about my partner and how this is effecting him as he has no one that understands what he’s going through either. So maybe talking on here will help us both. Thanks for reading my story. 

Comments

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @louise_96

    Welcome it’s great to see today.

    I am one of the Community Champion’s here at Scope 

    Please have a good look ? around & please let me know if you have any problems.

    @steve51

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi @louise_96 Welcome to the community glad you have joined us.

    Sorry to hear about your struggles and the difficulty finding support

    We are here to help and support you if there is anything you want o ask feel free and also join in any discussions

    I look forward to seeing you around


  • chiarieds
    chiarieds Online Community Member Posts: 17,439 Championing
    Hi @louise_96 - Welcome to the community. I don't know if the following resource may be of some use to you, but sending just in case. Please see: https://fndhope.org/about-fnd-hope/fnd-hope-uk/
    I hope the further links there may be helpful. It is a link to those in the UK, but part of this larger international concern for those with FND: https://fndhope.org/   which may also prove helpful.  :)


  • Adrian_Scope
    Adrian_Scope Posts: 14,426 Online Community Programme Lead
    It's great to have you with us @louise_96. I really hope we're able to offer you and your partner some support here. Please don't hesitate to ask if you need any advice or guidance. :smile:
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @louise_96! Just wanted to check in to see how you are doing. :)

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