Hi, my name is Vickymay87!
Options
Vickymay87
Community member Posts: 60 Connected
Hi everyone. My names Vicky. I’m new on here. I hope everyone is ok ?
Comments
-
Welcome to the community @Vickymay87 I'm not too bad thanks, how are you? Are you having a good weekend?Disability Gamechanger - 2019
-
Hey ? I’m not to bad thanks. I have a neurological disability and at times I feel alone. Came across scope and I think it will help ? have a good day
-
I have 2 neurological conditions, among other conditions too. We can all relate to feeling lonely, but we are a friendly bunch and someone will always be about if you want a chatDisability Gamechanger - 2019
-
Awww that is lovely. Yeah I was reading some discussions. You all do seem a friendly bunch. It’s great ??
-
Hi @vickymay87 and welcome to our online community
I'm glad you found us, it's lovely to have you here. You might find our Neurological Conditions discussion board interesting to see what other people with similar conditions have been talking about.
Also, our Coffee Lounge is a nice relaxing space to join in with general chit chat and play games.
I'll be about most of today so if you need me give me a shout! Do you have anything nice planned for today?Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
hi it’s great to chat. I’ve looked through the neurological disorder discussion and I came across my disability which is great ?? I have got Hereditary Spastic Parapelgia and I have added a comment to the discussion.I’m having a day in bed, I’ve not been to well lately. I had suspected coronavirus in April and since I’ve got no energy. I’m having tests to see if I have got CFS/ME.
hope you have a good day ? -
Ah, it's good to find others with the same impairment. I haven't heard of Hereditary Spastic Parapelgia before, I'll make sure to inform myself about it!
Oh heck, I'm sorry you aren't feeling too good. I have heard that it can take some people a long time to recover from corona-virus. I have my fingers crossed for your test results.
Enjoy your bed!! I love a day in bed watching movies It's good to do what our body is telling us to do too, so make sure to relax.Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
It sure is ? yeah it’s quite a rare condition to be honest. Me and my sister have got it and we’ve never met anyone else with it. We still don’t know what gene is involved but eyho.Thanks I’m going to have a good old rest. Hopefully I will have the answers soon ??Yeah apparently there are a lot of stories about this post fatigue syndrome that can affect people months after having coronavirus ?
what are your plans for today? -
It's always good to be medically unique Let me know about the test outcome!
I'll be on the forum until around 6pm and then I could do with getting a bit of fresh air so I might go for a little potter around the local park. I'm off tomorrow but need to spend that finishing my uni work - the joy
Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
A little walk around the park sounds nice. I’ve just brought a couple of rats ? they are chilling with me on the bed. Hope your studying goes well
-
Aww what are they called? Thank youOnline Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
-
They are called Pinky and the Brain (bra) for short -
Hi @Vickymay87
Welcome it’s great to meet you today.
Yes I have also got a number of “Neurological Problems”
Please please come back to me if there’s anything that I can help you with???
@steve51 -
It’s great to meet you too. I’m glad to join to have chats with you and everyone else.I won’t get so lonely now ??
-
@Vickymay87 Squeal!! Pinky and the bra are so cute!! Look at their little faces
I've never had rats before. I used to have a hamster called Greg who was amazing and always running around in his ball
Yep, no need to be lonely!! We are always here for a natter.Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
Hi & welcome from me too @Vickymay87 - It's good to meet you & your new pets! I hope your batteries feel a little charged after a day resting; it must be awful feeling so fatigued.As you see, there's always someone here to chat with in this friendly & supportive community, & do try the 'Coffee lounge.' I hope you enjoy being here.
-
They are so affectionate it’s unreal. I had pet hamsters too when I was younger
yep I will always be here to have a natter too -
-
Hi @Vickymay87 Welcome to the community from me too, glad you have joined us and look forward to seeing you around.
I dont like rats myself its the tail that puts me off but have had hamsters before
I have physical disabilities and sight loss I am usually around most afternoons on here
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions