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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is annas!

annas

Hello Everyone,

I am glad I joined this community.

I have been diagnosed with FND and muscle skeleton disorder 3 years ago.

I had an accident at work and after 3 years I have to retired on illnesses capability. Due to my mobility, chronic pain, spasms in back and pins and needles in my right legs, falling due to my mobility, ear pain, headache, bowel movement problem and urine too.

I am 42 years old now and I am glad my partner is helping me with my daily task and shower. Is so difficult for him too as he has got an ADHD and he is very active - me I am opposite, I am exhausted, fatigue and lack of sleep at night. Diazepam helping me during the night but that’s not always a case. I am waiting on referral on my psychology and I have to give up physio as after one session I’ve fallen and girls was in a tears. Came home and I was in agony for 3 days crying with a pain. I have seen my neurologist but he thinks it’s a trauma by my accident at work. I was study to work for NHS/council and now I have to forgot about this job. My listing and memory forgetting some ongoing conversation or my partner saying I am not listing.

I hope they will send me for some rehabilitation as I know waiting time is 1/2 years but I don’t know how things are in Scotland. I just don’t wanna meet anybody and I am so depressed as I lost my job I loved and I will never able to return to nursing/caring industry.

That’s me for now .

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SueHeath

Morning annas
Welcome to the group
Please have a good look around and join in the chats, i like to look through the recent discussions and the coffee room.
You sound like your going through it - i think this site will be perfect for you i find it a great distraction as well.
Look forward to seeing you around.

Alex_Alumni

Hello @annas thank you for joining the community this morning, and for sharing a bit about yourself. I'm sorry to hear about your experience with physio, that must have been concerning. Have you spoken to your GP about it at all?

I'm sorry to hear you've been feeling depressed, can I ask what support you are currently receiving?

In the meantime, please feel free to explore, if you'd like to you can browse discussions on the forum at the categories page, or head to the Coffee Lounge to get to know our members.

If there's anything you feel we can help with or advise you on, then please do let us know, we're here to support you.

Alex

annas

Hello everyone,

thank you for your kind messages as you did cheat me up.

Still not receiving any support due to awaiting on my psychology apt and also hope I will go to back to physio but they have nothing to do with me at the moment they think all this fnd is psychological, scans are ok. Just don’t understand why I am having a bad mobility and all these ongoing issues. It’s hard but I am glad I have someone beside me as my family stays far away

SueHeath

Good morning @annas
How are you this morning,
hows your weather been, some area's have been terrible, i have not been out side because of it, it seems a bit calmer here today so i think i will have a little walk around the garden, see if there is any damage.
Do you manage to get out side much ?
Have you got a garden ?

Alex_Alumni

I'm glad we could help reassure you @annas do keep us updated with how your psychology appointment goes, and well done for wanting to chase up the physio.

As ever, if you feel like we can support you further in any way, let us know

amro

Hallo @annas how are you doing. Welcome to the wonderful group. I hope condition get better as I know how difficult and painful it is. Chronic pain is very very strong. Do you take any CD medication for the pain ?