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We want to hear from you: please tell us about your experience of the online community.

Hi, my name is ukdonhud!

ukdonhud

Know one to talk too who understands.

I am currently 54 and have had my right hand missing from birth, stammer constantly from the age of 5. My good left hand has been doing the job of 2 and now reached a stage where it’s giving up, my son of 12 helps me with general tasks such as washing and cooking. I have always worked as I have never wanted to rely on the state . Applied for pip, received the outcome letter stating they have given me the standard rate as they believe I only am entitled to 9 points after my telephone assessment. A person who does not even know what I go through everyday reviewed my claim. I am so upset. It’s not about the money it’s the principle. I know people who have full function of their upper body and receive the same rate, Now I have to appeal. What made it worse the assessor stated “ if you situation changes let us know” like my hand is going to grow back anytime soon. The system is dis functional.

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Comments

durhamjaide2001

Hi there totally understandable that you are upset and angry with PIP you have come to the right place where you will have the right people to support you so I would like to welcome you to the community. As well as this I would put on any forms that he's a young carer because there might be more support out there for him. I have heard of some young carers charities and organisations that run youth groups and social events for young carers to meet new friends in the similar situation as he is is. Also I would advise you claim child allowance as well since you have a child living with you that's under 18. If you have any questions please feel free to ask them and someone will be able to point you in the right direction.

ukdonhud

thank you so much for your advise. I will look into

durhamjaide2001

ukdonhud said:

thank you so much for your advise. I will look into

Your welcome no problem at all. Keep me posted on what you find.

rebel11

ukdonhud said:

Know one to talk too who understands.

I am currently 54 and have had my right hand missing from birth, stammer constantly from the age of 5. My good left hand has been doing the job of 2 and now reached a stage where it’s giving up, my son of 12 helps me with general tasks such as washing and cooking. I have always worked as I have never wanted to rely on the state . Applied for pip, received the outcome letter stating they have given me the standard rate as they believe I only am entitled to 9 points after my telephone assessment. A person who does not even know what I go through everyday reviewed my claim. I am so upset. It’s not about the money it’s the principle. I know people who have full function of their upper body and receive the same rate, Now I have to appeal. What made it worse the assessor stated “ if you situation changes let us know” like my hand is going to grow back anytime soon. The system is dis functional.

You can request a Mandatory Reconsideration, to gain the points you need, do it in writing, giving 'real world examples' of how your conditions effect you most days. Use the CRMR1. Make sure you get Proof of Postage.

https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/appeals/mandatory-reconsideration-pip/

Hannah_Alumni

Hello @ukdonhud

Welcome to the community!

I'm so sorry you went through all of that, how are you feeling about appealing?

ukdonhud

Good evening. I am feeling I shouldn’t have to appeal for what i am entitled to. I have been penalised in my report assessment for actually working whilst I have my disability. They stated as I’m employed I have full function of my left hand. I nearly fell of my chair reading this. So it looks like if you go onto benefit all your life because of your disability it’s ok. Having a purpose and working hinders your claim. My right arm is withering in size, constantly having pains. Left hand repetitive strain. Tennis elbow and have a Ganglion cysts but still go to work to pay by bills. I have given up on the system.

chiarieds

Hi @ukdonhud - & welcome to the community. What this forum is all about is helping & supporting each other. A 'cringe-worthy' moment, but no-one is 'entitled' to PIP; it's whether any of your difficulties satisfy the PIP descriptors. That said, please take on-board the info rebel11 has posted, as we're all here trying to help.

You can indeed request a Mandatory Reconsideration, where another decision maker will look at everything again, & it is best done either by letter, or using the form mentioned: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/683380/if-you-disagree-with-a-decision-made-by-dwp.PDF

If you didn't previously do so, then please now mention those 'real world examples.' You should mention where you should have got points & why, stating what exactly happened, when & where did this happen, did anyone see it, & were there any consequences to attempting those activities/descriptors that apply. Again, as already mentioned, PIP is how you are the majority of the time.

You can claim PIP & work (so long as the work you do doesn't contradict your claim). Don't give up; you can do this, & everyone here will support you along the way.

Do have a look again at the PIP descriptors: https://www.cambridgeshire.gov.uk/asset-library/personal-independence-payment-descriptors-and-scores-april-2022.pdf

Say if you can't do an activity 'reliably,' i.e. safely, to an acceptable standard, repeat as often as one would reasonably expect, or if it takes you much longer than someone without a disability. See this mentioned at the end of the link above.