Hi, my name is chris85!
chris85
Online Community Member Posts: 1 Listener
Anyone else out there have the condition pvns /gaint cell tumour syndrome. Or anyone taking part in the 1000 genomes study.
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Hi @Chris85!
Welcome to the community. Afraid I don't know much about that syndrome - how does it affect you?
@Amanda77 recently wrote about her daughter being part of the 100,000 genome project:
https://community.scope.org.uk/discussion/32009/undiagnosed-conditions-is-knowing-better-than-not-knowing
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