Hi, my name is pipjoseph! My son has Lennox Gastaut

pipjoseph
pipjoseph Online Community Member Posts: 1 Listener
edited December 2022 in Talk about your impairment
My son has Lennox Gastalt and I’m looking to make contact with people in a similar boat 

Comments

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    A simialar boat to what? You'll need to give some more information before anyone can help.
  • chiarieds
    chiarieds Online Community Member Posts: 16,757 Championing
    Hi @pipjoseph - & welcome to the community. I'm not sure we have other parents who have a child with Lennox-Gastaut syndrome, tho we have had other members mention this previously.
    Has your son been prescribed any medication to help with his seizures? Are you finding his GP/consultants supportive, as it's always worth discussing this further with them? Has Epidiolex been mentioned?
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @pipjoseph

    Welcome to the community! :) How are you today?

    I don't know much about Lennox-Gastaut but with a google, I found it's known as childhood epilepsy. How old is your son? I see Chiarieds asked some great questions.

    How are you with it all? Have you got support too?

    Just to let you know, I popped your post into our Physical and Neurological Impairments section of the forum, in the hopes you find more people that could help :) 

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