Hi, my name is justTom!

justTom
justTom Online Community Member Posts: 5 Listener
in Start here and say hello!
Hi,
I'm in my 30's with a variety of neurological disabilities and mental health problems because of it. 

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,057 Championing
    Hi @justTom welcome to the forum 
    Join in with the conversations going around 
    And the games. Plenty of us here to natter to
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @justTom

    Welcome to the community! :) How are you today? 
  • justTom
    justTom Online Community Member Posts: 5 Listener
    Hi, I'm good thank you. An EEG on Monday to test for possible epilepsy. 
    Thank you for your welcome 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Glad to hear you are well :) fingers crossed it all goes well @justTom🤞
  • justTom
    justTom Online Community Member Posts: 5 Listener
    Thank you, that means a lot.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    A warm welcome and my thoughts are with you too @justTom. How are you feeling at the moment about having the EEG tomorrow?  :)
  • justTom
    justTom Online Community Member Posts: 5 Listener
    Thank you.
    I had the EEG but it wasn't quite as expected from my googling. 
    Finding the ward was chaotic because the hospital had changed around since covid I suspect without changing the signs. I would have gone home early in frustration if my mum wasn't with me.
    The nurse (i think) asked me lots of questions which was pointless because I don't remember anything and they also scanned my chest which hadn't shown up in my preparation.
    I am now wonderfully if all my diagnoses are linked because I spoke to a psychiatrist a few days earlier. 
    I wonder where furure treatment will go except for possible medication. 
    Sorry it's long but thank you for reading. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    I'm so sorry it was such a faff for you to find the ward, but glad to hear you had additional support with your mum :) 

    Hopefully you'll be able to get some more answers soon!
  • justTom
    justTom Online Community Member Posts: 5 Listener
    Thank you, that's great. 

    Yesterday my mum also told me it says in her mum's diary that I had speech therapy when I was a baby. 
    This is the first I've heatd of it and underlines my neurological problems. 

    I know doubt that I have any mental health problems and they are all neurological. 
    I've been thinking I have pathological demand avoidance but the only symptoms I thought I didn't have was a language delay. 

    I have a meeting with the occupational therapist assistant tomorrow (Thursday) but can't remember what was plannrd so I might discuss it with her.

    Thank you for reading 
  • SueHeath
    SueHeath Online Community Member Posts: 12,388 Championing
    Good morning @justTom hope your meeting with occupational therapist goes well for you today.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Keeping everything crossed for you for today! :) 
  • katz23
    katz23 Online Community Member Posts: 1,897 Empowering
    Welcome to the site @justTom

    I hope that all goes well for you today. 😊
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,810 Championing
    I hope your appointment goes well for today @justTom do let us know how you get on. 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    How did things go on Monday @justTom? :) 

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