Invisible conditions

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Strawberry1
Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
in Rare, invisible, and undiagnosed conditions
I have invisible conditions,  ( hidden disabilities) . I never realised the issues I have where classed as hidden disabilities.  It's actually put my mind at rest . 

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  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    Does anyone else think hidden disabilities are important?
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    A lot of my disabilities are hidden ones .
  • Adrian_Scope
    Adrian_Scope Posts: 11,754 Online Community Programme Lead
    I'm glad to hear that learning about hidden disabilities has helped put your mind at rest @Strawberry1. It can be validating to understand that the challenges you face are recognised and that you are not alone in experiencing them.

    Understanding that you have a hidden disability can be a powerful step towards self-advocacy and seeking the support and accommodations you need. It's important to remember that you have the right to ask for accommodations and support, and that doing so can make a significant difference in how you live your life. 

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    @Adrian_Scope , you time and replies are really appreciated. I just never realised how many invisible disabilities there was .  One of the issues I have is ulcerative colitis but I never realised it was a hidden one . Apologies for my late reply.  Hope you are well.  Thanks again.  Take care. 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    edited March 2023
    I have quite a few invisible/hidden disabilities myself @Strawberry1 and I would say they are just as important, if not more important, than the invisible disabilities.

    How are you coping with everything at the moment, particularly with ulcerative colitis? It can be confusing that it is 'invisible' but it is generally unseen.

    We are always here for you and listening to you if you would like to talk about this further or need any help  :)
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    @L_Volunteer , thank you for your kind reply 👍.  I a little bit out of sorts but I'm sure I will be alright  . Please take care of yourself please 🙂.  If I need a chat I will be in touch.  Apologies again for my late response.  
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    I hope you will be alright @Strawberry1. How are you feeling this weekend?  :)
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    Sorry for my late response @L_Volunteer , how are you today?  I'm just taking things easy today . Please take care of yourself and I hope you are ok 👍 
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    I haven't been around  much due to my colitis flaring up a bit again.  
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Sorry to hear you are flaring again @Strawberry1 Have you spoken to your IBD nurse or consultant? 
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    Hello @Hannah_Scope , apologies for my late reply . I hope you are well . I have an appointment soon to see the specialist.  It sounds silly but I don't like to call them before my appointment is due . I also get worried about telling them . I'm just one big worrier.  That probably doesn't help . I've taken some painkillers today which seem to have taken the pain off for now . I will tell them at my appointment about it keep occurring.  Sorry about this long answer . I really hope you are well . Please take care of yourself.  Thank you so much for your time. 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Glad to hear you've got an appointment soon @Strawberry1 and no need to apologise :) Let us know how it goes for you!
  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 7,035 Championing
    Thank you for your time @Alex_Scope ,  I hope you are ok 👍.  Please take care of yourself too. 

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