Hi, my name is accbabymom! I wanted to share my thoughts with other parents and have support

accbabymom
accbabymom Community member Posts: 9 Listener
edited April 2023 in Families and carers
My son is 3 and a half now and is doing well! I wanted to share my thoughts with other parents and have support! 

Comments

  • chiarieds
    chiarieds Community member Posts: 16,656 Championing
    Hi @accbabymom - & welcome to this friendly & supportive community. I hope you enjoy being here & get to meet other parents. :)  Let us know if you have any questions, & join in with any discussions of interest.
    There's a category on the forum for parents & families which you may want to have a look at: https://forum.scope.org.uk/categories/carers-of-disabled-children-and-adults

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 11,994 Championing
    Thanks for sharing you tips and advice as it will help others in the same situation as you. However please remember that we are here for you as well as much as you will help us there might be a time when you need advice and that's ok. 
  • accbabymom
    accbabymom Community member Posts: 9 Listener
    Thank you for your kind words. My son has Agenisis of the Corpus Collosum. I was wondering if anyone else had it ? What has everyone's experience been?

  • chiarieds
    chiarieds Community member Posts: 16,656 Championing
    Hi again @accbabymom - I should have realised that your son has Agenisis of the Corpus Callosum from your username! I'm not sure we have other parents here with a child similarly affected, as, as you will know, this is comparitively rare. What I can say is that you will receive great support here, as all parents are welcome, & we share any ups & downs.
    Have you also come across this website? : https://corpal.org.uk/about-acc/  whose info may perhaps be helpful.
    It's good to read your son is doing well, & I'd be interested if you'd like to share more with us; I look forward to hearing from you whenever you can.

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @accbabymom

    Welcome to the community! :) Just to let you know, I popped your post into our Children, Parents and Families section of the forum. Like Chiarieds said, I think you'll find lots of support there. I'm so glad your son is doing well <3