Hello all, my name is RavMS and I am new here — Scope | Disability forum
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Hello all, my name is RavMS and I am new here

RavMS
RavMS Community member Posts: 12 Listener
edited July 2023 in Start here and say hello!
I’ve had MS for around 13 years. I have mobility issues and would like to speak to those with similar ‘troubles’ and how they live their life. I get so upset when I see people walking around and I can’t

i live in London 

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 49,796 Disability Gamechanger
    Hi @RavMS welcome to the forum I can understand you getting upset, it's easy to feel that way when we see people doing the things we can't, but alot of people have hidden disabilities and may have their own struggles.
  • RavMS
    RavMS Community member Posts: 12 Listener
    So true. I used to travel, walk everywhere, work too. I don’t do any of those now. 
  • Sandy_123
    Sandy_123 Scope Member Posts: 49,796 Disability Gamechanger
    No I don't work any more either,  have you got support at home?  Or a support network. Lots of people travel with disabilities  have you looked into this.
  • RavMS
    RavMS Community member Posts: 12 Listener
    I live with my parents. I’ve never heard of a support network. Where can I find one? I’m the only one that has MS so it’s hard for people to understand why, for example, my limbs don’t work one day and are ‘better’ the next.  Why my speech os slurred on sporadic days. It’s such a weird illness. 
  • Sandy_123
    Sandy_123 Scope Member Posts: 49,796 Disability Gamechanger
    A support net work is people giving support, like carers or drs and family looking after your needs.    It is hard getting people to understand,  
  • RavMS
    RavMS Community member Posts: 12 Listener
    oh I see. I thought it was a special selection of people with supernatural powers 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    I wish I had supernatural powers @RavMS! But we are here to support you, even without supernatural powers  :p How have you been doing more recently?  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • WhatThe
    WhatThe Community member, Scope Member Posts: 956 Pioneering
    Hi Rav, the MS community will understand  <3 best wishes   

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