Hello all, my name is RavMS and I am new here

RavMS

I’ve had MS for around 13 years. I have mobility issues and would like to speak to those with similar ‘troubles’ and how they live their life. I get so upset when I see people walking around and I can’t

i live in London 

Sandy_123

Hi @RavMS welcome to the forum I can understand you getting upset, it's easy to feel that way when we see people doing the things we can't, but alot of people have hidden disabilities and may have their own struggles.

RavMS

So true. I used to travel, walk everywhere, work too. I don’t do any of those now. 

Sandy_123

No I don't work any more either,  have you got support at home?  Or a support network. Lots of people travel with disabilities  have you looked into this.

RavMS

I live with my parents. I’ve never heard of a support network. Where can I find one? I’m the only one that has MS so it’s hard for people to understand why, for example, my limbs don’t work one day and are ‘better’ the next.  Why my speech os slurred on sporadic days. It’s such a weird illness. 

Sandy_123

A support net work is people giving support, like carers or drs and family looking after your needs.    It is hard getting people to understand,  

RavMS

oh I see. I thought it was a special selection of people with supernatural powers 

L_Volunteer

I wish I had supernatural powers @RavMS! But we are here to support you, even without supernatural powers  How have you been doing more recently? 

WhatThe

Hi Rav, the MS community will understand  best wishes