Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Scoliosis

Options
Bettahm
Bettahm Community member Posts: 1,446 Disability Gamechanger
I got scoliosis after injuring my back in 1984. So I have a backward S curve on my spine, a twisted neck and twisted pelvis. Now I also have a twisted rib cage. My gp has finally done a referral to the pain management clinic. I get back, neck, shoulder, head, ear, arm, pelvis, leg pain, not continually but the pain moves around. Chest pain too. Also I have vertigo since 2017, tinnitus since last year and acid reflux since 2020. Think these are all due to scoliosis 
Does anyone else here have scoliosis 
What helps with it
Mine seems to be getting worse, maybe age, I'm 62
Nurse on phone in orthopaedic dept I rang at hospital said they dont do spines and I need to get on the 'spinal pathway'
Nearest is miles away in another county
I have agoraphobia 
Not sure what to do so turning here for help and advise.
I'm autistic with mental health problems 
No family etc, have to rely on hospital cars for getting to appts when I'm able to attend 
Thanks for any advise 

Comments

  • Albus_Scope
    Albus_Scope Posts: 5,552 Disability Gamechanger
    Options
    Hey @Bettahm I'm just checking in here really and to give your post a bit of a bump up to the top of the page so more people can see it. :)

    Have you managed to find any answers for scoliosis pain relief yet? 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    Hey @Bettahm I'm just checking in here really and to give your post a bit of a bump up to the top of the page so more people can see it. :)

    Have you managed to find any answers for scoliosis pain relief yet? 
    No. The referral was done sep 12 and I've been on the counties pain management website twice and filled in a general enquiry form just asking how long the wait might be but have heard nothing. 
    Not sure if theres any more I can do.
  • Albus_Scope
    Albus_Scope Posts: 5,552 Disability Gamechanger
    Options
    Really sorry to hear that @Bettahm, I''m really hoping the referral comes back to you asap.  Did you have any joy with your GP?
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    Really sorry to hear that @Bettahm, I''m really hoping the referral comes back to you asap.  Did you have any joy with your GP?
    I'm no longer able to contact my gp. They have been so bad in the past, dont make reasonable adjustments for my autism and mh, and have added to my anxiety. So I'm kind of without a gp currently. I am looking at gps outside the area but with agoraphobia cant get to any. So looking for one where I can sign up online. All adds to the stress. Nothings easy or straightforward. 
  • Albus_Scope
    Albus_Scope Posts: 5,552 Disability Gamechanger
    Options
    I remember you were looking into other GPs, but was hoping you'd have been able to find one online.  So sorry, they really don't make things easy for people who have issues with outside. 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    I remember you were looking into other GPs, but was hoping you'd have been able to find one online.  So sorry, they really don't make things easy for people who have issues with outside. 
    They (the world) dont make things easy for people who dont fit in, dont conform to the norm. That covers an awful lot of us here.
    Good to have Scope to shout out to on this alien planet.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
    Options
    @Bettahm I hope we can continue to be a place of support for you <3 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    @Bettahm I hope we can continue to be a place of support for you <3 
    Thank you 
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.