Hi, my name is susanchadwick65!

susanchadwick65
susanchadwick65 Online Community Member Posts: 1 Listener
in Start here and say hello!
Hi i have had LS  for about 28yrs now and i was told i would be on steroid cream for life. Im sure using steroid cream has worstened my condition over the years as now my skin has thickened in places, almost leatherlike, but in other areas blisters and splits. It itches like mad when i am warm in bed which frequently disturbs sleep. I can oly say it is the most uncomfortable, painfully agonizing condition, that never fully goes away, and always comes back with a vengence. If only people understood this condition, most people have never heard of it. And yes it can be very dissabilitating. I go into depression with it, the pain can be unbearable. I have a high pain threshold, but this really is another level, as it is longterm. More like a life setence.

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  • Rosie_Scope
    Rosie_Scope Posts: 5,939 Scope Online Community Coordinator
    Hi @susanchadwick65, welcome to the community. Sorry to hear your condition is so difficult to deal with at the moment, I hope the community can be a place of support for you.

    How are you doing today? Our Coffee Lounge and Games Room are both great places to chat to other members and take your mind off things. Or take a look at the different categories and feel free to ask any questions you might have :)

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