Hi, my name is Beggy321! — Scope | Disability forum
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Hi, my name is Beggy321!

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Beggy321
Beggy321 Community member Posts: 16 Listener
edited December 2023 in Start here and say hello!
i could use some help / advice in 2019 i had total disc collapse /degeneration at c4/c5 also affected thoracic t1/t2 lumbar l5/l6 sciatic s1/s2 i dont qualify for pip even though i meet or surpass their criteria i some how score nothing i could list many things that are affected and how it stops me doing things .ie breathing maintaining speach eating prepping food bathing getting clothed .difficulties loss of arm use both arms and hands chronic lower leg pain walking standing sitting to list some i dont qualify i've been discharged from hospital care as they say no more can be done we wont pin it as it may not help or in fact make it worse im lucky im not neck down paralyzed and on a ventilator i dont get any assistance what so ever and never have i have contacted adult social care they dont call back i have wrote to my local councillor nothing back .I fear my condition will get worse and i will be stuck in a 12th floor flat not being able to use my phone to ring for help let alone open the door when my arms and hands dont work

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  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 20,266 Disability Gamechanger
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    Hello @Beggy321 Welcome to the Community. You can apply for a needs assessment by Social Services.
    https://www.gov.uk/apply-needs-assessment-social-services

    A health and social care assessment is carried out by Social Services to find out what help and support you need, like healthcare, equipment, help in your home.

    If you have any questions please ask. Take care.
  • Albus_Scope
    Albus_Scope Posts: 4,242 Scope online community team
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    Heya @Beggy321 and a big welcome to the community!


    I'm sorry to hear you're struggling with your condition.  With regard to your PIP, did you ask for a mandatory reconsideration?  It's very normal for people to be turned down for PIP on the first attempt, the DWP really likes to make people fight for it.  We're all here to support you if you wanted to go for it again? 

    Do you have any friends, family or even a GP who can support you currently? I hate to think you're alone through all of this. 
    Albus (he/him)

    Online Community Coordinator @ Scope

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  • Beggy321
    Beggy321 Community member Posts: 16 Listener
    edited December 2023
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    was on pip via a tribunal ran out in 2022 this is a reclaim that took a 1yr to deny me mandatory requested saw my gp think he re-referring me to spinal and maybe he contacting DWP to tell them the effects im dealing and not just your general this happened to him and adult social care calling back today as for friends 1 but he works so not always available got a bro in another country so fending for myself or rather not fending 
  • Albus_Scope
    Albus_Scope Posts: 4,242 Scope online community team
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    I'd urge you into looking at reapplying for PIP, they're very good at turning people down.  It's less about what evidence you send them and more about how you answer the descriptors. They're a bit sneaky.  But we're all here to help you. :) 

    Will you let us know how the call today goes please? 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Beggy321
    Beggy321 Community member Posts: 16 Listener
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    yes i will let you know how it goes been fighting DWP since 2006 dont know how much fight i got left feels like quicksand 
  • Albus_Scope
    Albus_Scope Posts: 4,242 Scope online community team
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    You got this @Beggy321 and now you have all of us to lean on for support too. <3 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Beggy321
    Beggy321 Community member Posts: 16 Listener
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    social care called dont sound promising they putting me forward for an assessment then its down to the carers wether they come or not as i struggle with another 2 conditions that serious hamper my ability to wear clothes with out causing physical mental damage so i guess they will use the fact im naked and a smoker to not turn up back to the beginning 

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