help with money management, health and social care, care act 2014, direct payments etc

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peaceofmind
peaceofmind Online Community Member Posts: 14 Connected

I have multi-morbid chronic health issues and long term mental health issues and cognitive issues and I am struggle to manage 'understanding' of this new world totally relying on benefits and needing adult social care. I am almost 60 and on top of everything else have just run out of hope and resilience to cope with it all. I have a history of trauma and abuse and I am sure this plays a part into it however hard I have worked at and try to heal from it all. However I am just not coping and managing all my banking, understanding my finances, the direct payments, the legalities of the CARE ACT 2014 and the care from the council and their obligations. I have a social worker however trust has diminished due to various errors upon me.

I had a PA for 4 hours a week which was increased to 8 hours per week then I found out I had to pay £78.34 pw for the PA at £19 ph minimum and pay back £700 due to receiving LWRCA and 'forgetting to inform the finance department' although I had informed my social worker as soon as I heard from UC/DWP.

I feel very upset about my social worker not reminding me to inform the finance department as I would not have continued if I had to pay that amount for care support.

I live alone and have no other help or family or friends to help at any level. I simply manage the best I can to do what I can and if I can't do it I just leave it and go without. Cognitively and mentally and with severe fatigue I am massively struggling to navigate the system and potentially make a complaint. I am terrified of conflict and maybe doing something wrong and making matters worse.

I am due to have another care assessment soon this time with an advocate which I should have had previously but my social worker is stating that I refused to have one which is simply not true. Trust has diminished and I feel lost and unable to know who or where to turn to for help in these matters…..Sorry to ramble. ….hard to write!

Comments

  • Kimi87
    Kimi87 Online Community Member Posts: 6,300 Championing

    I'd recommend seeing what help and support is available through a local organisation:

    https://advicelocal.uk/welfare-benefits

    Most organisations don't just deal with benefit claims but many many other things too.