Hi, my name is allthecolours! struggling accepting my disability.

allthecolours
allthecolours Community member Posts: 5 Listener
edited October 18 in Start here and say hello!

Hi there, I'm totally new to this. I have severe spinal problems which means I can only take a couple of steps with a walking aid. I am struggling accepting my disability and that I am not going to recover, and that this is my life now. I have no support from family and I'm still waiting for a social worker to be allocated. I need some advice and some others to have contact as I feel very isolated

Comments

  • Nightcity
    Nightcity Community member, Scope Member Posts: 2,571 Championing

    hey @allthecolours welcome to the forum.

    I have mild issues myself with my spine I'm sorry yours is so severe and limiting.

    we'll do all we can to help

  • allthecolours
    allthecolours Community member Posts: 5 Listener

    Thank you It's good to hear from you. I am really struggling to accept that it's so painful and impossible to walk. I am struggling to accept this 😪

  • Nightcity
    Nightcity Community member, Scope Member Posts: 2,571 Championing

    Bless you. Do you have anyone at all to help you, friends, a good neighbour?

  • allthecolours
    allthecolours Community member Posts: 5 Listener

    No nobody, my family just aren't supportive at all. I feel very low atm

  • Nightcity
    Nightcity Community member, Scope Member Posts: 2,571 Championing

    how awful for you let's see if we can do something here

    @Rachel_Scope @Albus_Scope @Rosie_Scope @Jimm_Scope

  • luvpink
    luvpink Community member Posts: 548 Empowering

    @allthecolours

    Just wanted to pop in and welcome you to the forum.

  • allthecolours
    allthecolours Community member Posts: 5 Listener

    Thank you It's lovely to greet you all. I have been feeling so alone with all this, thank you for making me feel welcomed

  • Albus_Scope
    Albus_Scope Posts: 8,332 Scope Online Community Coordinator

    Heya @allthecolours and it's a big ole welcome from me too.

    I'm so sorry you've been feeling alone, we're all here for support and chats whenever you need us. 😊

  • bennysmum
    bennysmum Community member Posts: 1 Listener

    Hi

    I joined just in the last hour and I just wanted to say hello

    You are not alone, you hang on in there

  • Bluebell21
    Bluebell21 Community member Posts: 4,630 Championing

    Hi @allthecolours Welcome to the Community. You could apply for a health and social care assessment. This is carried out by Social Services to find out what help and support you need - like healthcare, equipment, help in your home.

    https://www.gov.uk/apply-needs-assessment-social-services

    I hope you are able to get some help. Take care.

  • Durhamshire
    Durhamshire Community member Posts: 69 Contributor

    Hi there. I find the Forum & Scope very supportive. I am very isolated, with no family around and a negligible support network. I will help You if I can.

    I have severe anxiety, depression and physical condition Mafucci's Syndrome. Affects my hands and lower right arm. Limited movement, dexterity, painful, 3 fingers amputated, haemangiomas (some calcified). I get very frustrated and find difficulty doing everyday things.

  • Bluebell21
    Bluebell21 Community member Posts: 4,630 Championing
    https://forum.scope.org.uk/discussion/comment/924963#Comment_924963

    Hi @bennysmum Welcome to the Community. I hope you enjoy your time on the forum. Any questions just ask. Take care.

  • allthecolours
    allthecolours Community member Posts: 5 Listener

    Thank you all for making me feel so welcomed it means a lot. The isolation is awful but you've all made me feel so much better, thank you

  • Rachel_Scope
    Rachel_Scope Posts: 1,655 Scope Online Community Coordinator

    Hi @allthecolours, welcome from me too 😊

    I can understand your struggles to accept your disability. I went through a grieving process when I was first diagnosed with Rheumatoid Arthritis and seeing my friends doing things I'm not able to do was really hard at first, and to be honest it still bothers me. We have lots of people here who can relate to how you feel and can help lift you up.

    If you want to chat about anything you can look at our Coffee Lounge or pass the time in the Games Den. You'll get to know lots more people 😊

  • Catherine21
    Catherine21 Posts: 2,680 Championing
    https://forum.scope.org.uk/discussion/comment/924564#Comment_924564

    Welcome

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