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Just feeling so low

hmass01

Well short background, colorectal cancer diagnosis 2023 surgery, chemo & now in remission, ongoing issues ever since, currently waiting for appointments with gynae, neurologist for head, neck & spine (2 referrals) 1 urgent advised 10 months wait. Just be diagnosed with type 2 diabetes & high cholesterol.

I'm just in so much pain all the time, currently on oramorph 4 times a day & gabapantin 3 x a day. I take another 14 medicines every day for all my other conditions.

There seems to be no end in site & it's getting harder each day to carry on... I woke this morning totally ready to meet my maker!!!

I cannot see any of this getting better.

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veriterc

/try the articles on www.aftercancers.com.

Scroll down to Categories - Getting an appointment. Top two worked for me - Good Luck

VRC

theme79

It’s really hard to deal with it all and it can and is often totally overwhelming- I await my lasted blood results after treatment for high risk prostate cancer - gruelling and the side effects seem to be ongoing whether or not the treatment has been successful- sometimes I wake up and am just where you are now … sometimes there are days that seem better and sometimes worse - all I can say is I empathise and know a little of where you are and there are many of us even though it may seem and feel you’re alone. The delays and lack of medical support are really not ok and just make our journey all the worse

Thinking of you

hmass01

https://forum.scope.org.uk/discussion/comment/979694#Comment_979694

Thank you I've sent emails this afternoon. I have 3 referrals at present. 1 I have no idea of waiting time.

An urgent one that has Nov as it's date.

& An non urgent with 23+ weeks as an approximate time.

So we wait & see.

hmass01

I have spoken to my GP & surgery nurse who both are quite dismissive of my plight I arranged therapy for myself, which they gave me 6 weeks of. I don't like to burden my family too much they have lives of own, to be getting on with.

Jimm_Alumni

Hi @hmass01, I'm sorry to hear about the pain and everything else you are having to deal with. Can I ask if you are getting any care, help or support at home and elsewhere? Just trying to think of things that could make your day to day living a little easier. Please do look out for an email from the Scope team!

hmass01

I have support from my partner, thank you I will look forward to the email

veriterc

Deep up the good work - I usually make an appoitment with myself to phone once q week, and ask politely if there are

any cancellations. Make a joke, and sometimes they remember you and "keep" a cancellation for you.

hmass01

Unfortunately when dealing with my hospital they just become very obstinate if you call regularly.

Kerry2024

Sorry to comment on this conversation, I'm just having difficulty starting my own thread..

Could someone please advise me how to do so?

I have previously signed up to the online community. I use to reply through emails it accidentally deleted the conversation, now can't remember how i originally posted on here?

Apologies again and thankyou 🙂

Mary_Scope

Hi @Kerry2024

You can start your own thread by clicking New Post and then select New Discussion from the drop down menu. If you use a laptop it is usually on the top right hand side of the page in a dark purple box with white letters.

If that doesn't work and you're still having difficulties, please let me know and i'll see if I can help fix it!

Kerry2024

Hi Mary

Thankyou.

Unfortunately it's still not working.

I go to the home page using my phone, click on the 3 lines in left hand side corner where but doesn't say anything about creating new posts.

Thanks again 👍

hmass01

Ok if on your mobile phone I have android I have a little plus sign bottom right corner click that then start new discussion

Kerry2024

Thanks very much 😊

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