Hi, my name is Eliot_Hopkins_hkpp!

Eliot_Hopkins_hkpp
Eliot_Hopkins_hkpp Online Community Member Posts: 1 Listener

Hello all, I'm new to SCOPE, not really sure what its all about but I'm an ex-electrician, engineer and lecturor now housebound, I suffer from hypokalemic periodic paralysis, a mouth full I know, it means Low Potassium PP which boils down to i suffer from paralysis and weakness when i awaken, i don't know how bad its going to be or if its going to get better or worse. I hate it, I don't have it that badly but i do have some permanent muscle weakness due to repeated attacks. I can stand most the time but it gets better but mostly worse. I'm 53, i feel a 153, I live alone, i'm isolate most of the time. Most of the time if i get an attack i just have to wait it out and hope it doesn't get worse. I have had repeated neggative experiences with the NHS, discrimination, being lied about, being lied to, yata yata yata but they are a bit under the gun so no need to labour the point. I do spend a repeated amount of time considering what i must have done in a previouse life to have warrented this journey but every burden has it's lesson and I'm always ready to learn. So in closing, i'm here to learn, share my journey and it's lessons and you never know maybe improve my lot by extention.

Comments

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 9,668 Championing

    Hi @Eliot_Hopkins_hkpp Welcome to the Community. I hope you enjoy your time on the forum. Any questions just ask.

    I am sorry you have had such negative experiences with the NHS.

    Have a look around and join in when you are ready.

    Take care.

  • Morgan_Scope
    Morgan_Scope Posts: 782 Scope Online Community Coordinator

    Welcome to the community @Eliot_Hopkins_hkpp. Our online community is a place for members to connect, ask questions and share experiences. We're glad to have you with us, so please let us know if there's anything we can do to support you.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 3,575 Championing
    edited February 22

    Hello Eliot and welcome to Scope 🤗

    We are an online forum connected by disability. You can make new friends, seek advice about your health conditions or benefits and join in with games. Scope employs moderators to monitor the feeds and jump in to manage conflict or inflammatory comments.

    We are a friendly bunch of regulars and new members. Anyone can start a new topic for discussion. Glad you found us!

    Also Eliot, in time, you will be able to edit your posts as I have just done and send private messages to members you trust.

  • luvpink
    luvpink Online Community Member Posts: 1,611 Championing

    @Eliot_Hopkins_hkpp

    Hi

    A very warm welcome to the community.