Diagnosed with HSP7. Looking for stories and information.

Irishguy

Hi everyone, Got diagnosed with HSP7 last October 2024. I'm 41 years old. Recently married with 2 young kids. Living over in Ireland. Taking 5mg Baclofen three times a day. Anyone else in a similar situation? Don't really know what's in my future and would love to hear some stories/information.

luvpink

https://forum.scope.org.uk/discussion/130949/hsp

Hi and a very warm welcome to the community.

I have no idea what HSP7 is, sorry.

Irishguy

Oh sorry, Hereditary Spastic Paraplegia 7 😂

luvpink

https://forum.scope.org.uk/discussion/comment/995414#Comment_995414

no worries.

Are you Irish yourself?

Irishguy

I sure am! Just reaching out to see if anyone's in the same boat. Looking on Google just scares me 😂

Albus_Alumni

Hey there @Irishguy A big welcome to the community and an extra big congratulations on the recent marriage. 😁

I'm afraid I don't know a great deal about HSP7, but hopefully if I move your discussion, more people in the know will see and hopefully offer some top advice. I hope that's OK?

Irishguy

You're the boss! 😂

Albus_Alumni

I'll be back in a minute, I'm just showing this to my boss. 😆